Hi @helpme, I was so bummed to hear your update. I completely understand the miserable combination of consistent pain coupled with unsatisfactory medical directions. I didn't have success with Kenalog either and was waiting to get results on a few other fronts before responding to your post. I now have more insight so I'll share what I can in hopes it's useful for you, or others.
My story became too long - I wanted to give enough details in case some of the subtleties resonated with anyone - so I migrated it to a new post so as not to dominate your story.
You can find it here: topic10846.html
Fingers crossed my story or these doctors can help you!!!