by GilmoreGirl » 09 Jun 2017, 07:50
Hi all,
Just wanted to give an update.
Started electrical biofeedback with my pelvic floor physio and it turns out my muscles are pretty weak down there. I have perineal descent that's caused a small pouch off the rectum that is causing difficulty with bowel movements. We are trying strengthening exercises to fix this.
I finally saw a CRS and it was useless. I was rushed by him, he just read my file, came in and did an exam and said eat fibre and drink water, and to give up weightlifting from now on if the physio says I have perineal descent. He also said I'm too young to be having these issues and that I'm likely to get a hernia if I keep lifting so I should stop. This had me in tears The biggest problem was he never even asked me to explain what the issues are. We didn't talk about my hemorrhoids at all. He did the exam and I didn't get to tell him about physio/perineal descent until after. I tried to ask him about tests like defecography but he brushed me off and just said go to physio. I'm devastated about this appointment and don't know what I will do without weight lifting.
I also had an appointment with my gp about my stomach pain, which is worse than ever. She hasn't been able to get me a gastroenterologist. She thinks the other one did all the tests fine so I'm not sure she even thinks she should be referring me. She also said anxiety is a main factor (I'm so tired of hearing this...I can only do my best with anxiety, see my psychologist etc...I think they just want me to take anti anxiety drugs to shut me up I don't know). She did give me a drug to try called constella that I will start tonight. She didn't think any of the other tests I mentioned (h pylori, sibo, transit tests, blood work, stool tests) were worth it.
The butt pain is improving still, but still lots of difficulty having bm. And the stomach pain and discomfort is holding me hostage. I have pain between 6-9/10 every day at some point, for a least an hour or two. At the best, I have serious discomfort at all times. And I have never been so depressed, even when the fissure was bad. I knew then at least I would eventually get better even if it meant surgery. Now, I'm told I have to find a new job and passion and I don't even want to wake up in the morning and face the cycle of stomach pain again - with no apparent cause and no doctor willing to really try and help me.
I don't know if anyone has any ideas on how to get more help with both the pelvic floor and the stomach pain. I don't have anywhere left to turn really here. I'd be willing to go to Toronto or another city in Ontario if it meant I could get some compassionate help