by NickF » 12 Feb 2017, 12:19
Thanks MPB. That's exactly what I'm thinking of doing. I'm going to see a few different CRS's privately and see which one I think will be best suited to do the advancement flap. Unfortunately I'm in London, not the north but thank you for that advice. If you happen to come across anyone you think might be good in the south, please let me know :)
And I totally agree about the CRS's being unhelpful here. I've seen quite a few now and they all think it's okay to simply say that they don't know what to do with me. As if it's no big deal to send you away to live your life in such extreme pain. I can't help but think that it's because the NHS is so over stretched that they simply don't have the time to try and figure out solutions for complicated cases. So im definitely going private now and hopefully they will put me on their NHS list for surgery when I find someone good.
Thank you for your message