by Lauren12 » 20 Sep 2012, 22:14
I don't know if this information will help. I also had a healed fissure but was still in a lot of pain. I saw three consultant colorectal surgeons (I live in the UK) and only the third really knew his stuff and cured it.
When surgeons do a lateral internal sphincterotomy (which I assume is the surgery you had ten years ago) they decide how far to cut. Obviously if they cut the internal sphincter completely, whilst it would completely remove the muscle spasms that cause the pain, the patient would be incontinent, so how far to cut is the surgeon's judgement, so far as I know. I have heard and read of patients going back for more surgery some time later and having the muscle cut further.
I had a chronic fissure for two and a half years. My life was a misery. The first colorectal surgeon I saw tried Diltiazem hydrochloride 2% Cream (Anoheal). I used this for about five months - far beyond the time that research shows it's effective, as I learned later. I saw the surgeon two or three times during this period and each time he said the fissure was healing on its own. Yet still I was in huge pain. He referred me on to a more experienced colo rectal surgeon, this time someone who works in a hospital which specialises in conditions of the lower bowel.
The second colo rectal surgeon injected Botox into the internal sphincter after extensive scans to see if there was any other condition responsible for the pain - there wasn't. It was hypothesised that the pain was a result of the muscle spasms, I assume, as by this time the fissure had healed. So I went under general anaesthetic expecting to have a botox injection and woke up not only having had botox injected, but having had my haemorrhoids banded and skin tags removed as well in case they were the source of the pain! Very painful. Once the pain of that healing had passed however, it was clear the botox hadn't worked to take away the pain, so six months after the first lot of botox, I had another lot. Still it didn't work.
At this point, and in despair, I saw the third colo rectal surgeon who thankfully was a godsend. He understood entirely what was happening and had had similar problems himself in the past. He must have read every bit of research available. My fissure had healed, but I was still having muscle spasms. Furthermore, because the anus had now become tight (as with any muscle in the body, when it's exercised, it builds up) I was re-fissuring in a minor way almost daily with bowel movements. Further, because I'd been in pain for so long, I'd started up a pain cycle between that part of the anatomy and the brain, so that minor fissures which wouldn't have been painful to someone who'd never had a major fissure, were excruciatingly painful for me. He explained that the anus is a sensitive part of the anatomy and it can take a long time to settle down. He recommended the lateral internal sphincterotomy and I leapt at the chance. This operation hadn't even been mentioned by the previous surgeon. When I asked why not, he said that it was medical orthodoxy (in the UK at least it seems) that if a fissure has healed, then the patient is not offered the operation, even if they're still in pain. When the Botox had failed, the previous surgeon wanted to refer me for biofeedback. However the current surgeon said that biofeedback was more effective for conditions such as incontinence, and there was no great evidence to show that it was that effective for spasms connected to a fissure.
So I had the LIS op. I'd read accounts on the internet from people who that said that their pain went in a very short time, days or weeks. Well my pain took months to subside to normal sensation, so anyone reading this who wonders why their pain hasn't stopped days or weeks after the LIS - some people take longer to get back to normal, or that was my experience anyway. It doesn't mean it's not effective. Do check with your surgeon if you're worried about anything however. I did have some trepidation at the operation but the surgeon said he thought I'd been surprised in that it wouldn't be as painful as I thought afterwards - and he was right!
Well as mentioned, it took me months to get back to normal after the op. The pain cycle that I'd built up through having suffered chronic pain for two and a half years slowly downgraded to normal sensation. The surgeon also explained that the whole operation of the anus and lower bowel in passing a stool is quite an intricate process and that needed to subside to normal. I think he meant that when you have a fissure, you're unconsciously tensing 'down there' in anticipation when you pass a stool, even if you don't realise you're doing it - and that takes a while for your brain to relearn a more relaxed way of going about things.
So over a year now after the operation, it's normal. I owe my life to that surgeon - he gave me back my life. He said my muscle tone in the anus is still relatively high, considering I've had the operation, so for a while I did, still, experience some spasms, but much reduced. He said that in women, anal muscle tone reduces after the menopause and whilst in some women that's a problem, in my case it would be a good thing.
I did, still, have one day where a fissure returned, more than a year after the op and I was plunged into depression, thinking the whole thing was happening again, as it was the sort of pain I'd had pre-op. But it only lasted one day! I was OK by the next day. When I rushed back to the surgeon to ask him about this, he said if something like this happens then because I've now had the op, it will heal, as it did. I'd been on holiday at the time, so change of diet and heat changed bowel habit, leading to a minor fissure.
Whilst I was on stool softeners during the healing process, and when I had a fissure, I've now stopped all of them, and maintain a regular bowel habit by drinking 200 ml prune juice a day.
OP, I'm really sorry to hear you're going through another bad time. Please hold up - if it can be fixed once, it can be fixed again. I'd advise to find yourself the most experienced colorectal surgeon you can. That's not always easy, as I know, as the surgeon I saw who was the most renown, was the most unhelpful. I'm sure they'll do all necessary scans and procedures to establish that it is fissure-related and not some other condition causing the pain - but as I know, you can still be disabled with pain even after a fissure's healed, and some other treatment may be necessary to set the anus right again. I wish you all the best.