by CreativeMuse » 30 Oct 2013, 10:35
I haven't posted in about a month, as I've been going through a lot and tend to just hide in my mental cave and shut the world out when things get overwhelming.
In July after having an extremely painful flex sig with a GI doctor, I was diagnosed with an anal fissure. You can read more in depth details in my intro post. In September, I developed a lump in the same area (it went from the size of a pea to the size of an almond in 3 days), which was first diagnosed as hemorrhoids and I was given a 10 day dose of Cipro because there was inflammation and some discharge. It did not get better, and I followed up with at the office of the original surgeon who I had met with (and fought with to try diltiazem before he performed LIS). He was out on vacation, and the other surgeon barely looked at me, told me it wasn't hemorrhoids, that nothing appeared wrong, that the fissure must be healing from the inside out, and it was just excess skin from the healing. I've been frustrated with my experiences with the medical professionals in my area, so I did some research, and found a well reputed CSR to see about an hours drive. I was able to see him 2 weeks after the previous surgeon visit.
When he examined me (with his finger), he said he was deeply alarmed and scheduled an emergency colonoscopy and a tissure biopsy. Result of the biopsy: anal cancer (squamous cell carcinoma).
Tomorrow I meet with an oncologist, and will be getting a CT PET scan to find out what stage I am at. Treatment typically (depending on stage and if it has spread to other areas) is chemo and radiation for at least 6 weeks...longer if it is not at an early stage.
I don't know how this was missed on the flex sig. This cancer is not the kind that comes from polyps, but more of a skin type of cancer. It's extremely rare (1 in 100,000) and unfortunately I have it.
Please, please go to a CRS if you are having problems and the fissure is not healing, or if you develop a lump and are getting inconsistent diagnosis. Two surgeons who were considered "the best local surgeons" in my area didn't take the time to check me out (besides just visually parting my butt checks and looking at it), and just acted with their god complex. I wish I had gone to the CRS back in July...it could have been caught sooner. Meanwhile I've been suffering in extreme pain with no compassion.