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New here, but not new.....

Postby North West Jen » 06 Nov 2019, 23:45

Hello!
So I typed up a whole big thing and when I hit submit everything went away and I have to start all over. So I will be a lot more brief than my first post.

37 year old female with 3 kids (youngest 16 months). Problem first began in May 2016. Was misdiagnosed until September 2016 when I saw CRS who confirmed AF. Did dialtzem (so?) for 4 weeks until it irritated my skin. Stopped cream and AF came back. Had Botox and worked great until 3 weeks in I got an abscess at fissure site which turned into fistula. Had fistula surgery and took forever to heal (about a year). Felt pretty good but would have off and on burning inside but pain was manageable and not nearly as bad as before. I considered it a win.

Fast forward to 2 weeks ago. I finally had enough of not ever feeling “normal” in that area and knew I needed to go back to CRS. She confirmed that I have a AF inside just above where the old fissure was. I was also red until the anal area and told me to eliminate dairy, coffee, sofa and spicy foods. I go back to CRS in 2 weeks to see if any healing has taken place. If not, CRS wants to be Botox again.

Here’s the thing. I’m nervous about Botox due to my history of last time. I believe I have a tight sphincter muscle and suspect this is what is causing my issues the last 3 years. I was misdiagnosed 3 years ago and had a lot of trauma to my butt before I finally got the help I needed. I think I need LIS to finally kick this thing once and for all. I’m going to talk to my CRS about this in 2 weeks.

I will be starting a diary from here on out in hopes to help someone who is experiencing the same thing. Or, if anything, to let you know you are not alone.
North West Jen
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Re: New here, but not new.....

Postby patience_and_healing » 07 Nov 2019, 23:22

Welcome to the forum. It's often a long and painful journey trying to fix our butts. It might be worthwhile to try Botox again, it's probably not what caused the fistula to occur.

Your CRS may be reluctant to do an LIS because you've had multiple children. Some research papers advise an anal ultrasound to make sure there are no hidden defects that could result in incontinence after LIS in women who've given birth. And don't hesitate to get a second opinion if you feel you're not getting the right care.
8/16-12/16: Fissure due to antibiotics
5/17: Botox to sphincter
9/19: Trigger point injections and pudendal nerve block
Currently in pelvic physical therapy
patience_and_healing
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Re: New here, but not new.....

Postby North West Jen » 08 Nov 2019, 09:12

Thank you! I will discuss Botox again and possibly LIS when I meet with my CRS on the 18th. More to come....
North West Jen
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