3rd Surgery not worked

LIS has failed me again

Are you having, or have you had a Lateral Internal Sphincterotomy (LIS)? Please share your experiences here, or ask any questions.

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Re: 3rd Surgery not worked

Postby msimon » 30 Apr 2015, 02:37

Lloyd, I cannot believe you have had LIS 3 times! How awful! And botox each time? That doesn't make sense to me, isn't that overkill? I was asking about whether you have had a pressure test/manometry because some fissures are not caused by/perpetuated by high resting pressure. I these cases, botox and LIS are unlikely to help.
In your picture it looks like you have an anterior/front fissure....am i right?
Do you have incontinence?
Dec '13 Fissure from anoscope
3 X internal sphincter botox
'08-'15 Botox for pelvic floor dysfunction
Nov '14 LIS/sentinel tag removal
Feb '15 Deroofing of recurrent infection from LIS
summer '15-healed but still ongoing muscle dysfunction/pain
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Re: 3rd Surgery not worked

Postby Lloyd31 » 30 Apr 2015, 09:49

I had 3 fissures one at the front (12 o'clock) a small one and then one at 6 o'clock a big one internal with lump behind it and another internal 9 o'clock

First op was back in 2003 second 2007 and most recent February

No tests that I'm aware of for pressure.

Yes incontinence is really bad since the operation I'm hoping that it's just temporary with Botox. I've had serious bouts of diharria since the operation making me have to take codine regularly to constipated me so I can function in work. As soon as I stop then the diharria returns!

HIV test came back negative thankfully

So on steroids for 2 more weeks then back to hospital but I feel like a lab rat and have found this forum to learn what others have done!

I have a lot of symptoms of Chrones but it mainly effects my mouth, esophagus and anus so I think it's likely to be perianal chrones but the Dr's don't seem to think this and I don't want to suggest it as I feel they should be the experts. I'm not skinny though (not overweight either)

Frustrated is an understatement
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Re: 3rd Surgery not worked

Postby msimon » 30 Apr 2015, 12:41

So do you still have 3 fissures? Do you think you are healing at all?
Dec '13 Fissure from anoscope
3 X internal sphincter botox
'08-'15 Botox for pelvic floor dysfunction
Nov '14 LIS/sentinel tag removal
Feb '15 Deroofing of recurrent infection from LIS
summer '15-healed but still ongoing muscle dysfunction/pain
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Re: 3rd Surgery not worked

Postby owmybum » 30 Apr 2015, 13:10

I'm sorry you have been suffering so long, and been through so much.
Is that photo after an LIS op or just what's going on now??
I must agree with msimon... You really need a manomentry pressure test to see the real resting pressure of your sphincter. It may be worth having an anal ultrasound too to see the muscle, and if there is anything else going on up there that could be causing the fissures and bleeding.
I have been trying to get to the bottom( no pun intended ) of why my chronic fissure wasn't healing. I had all the tests and was told my resting pressure is low. I have now been diagnosed with HMS with Elders Danlos syndrome.... Which basically means I have very fragile skin. Google it and see if you recognise the symptoms in yourself.

OMB x
fissure after hem banding and tag removal feb 11
Pelvic floor therapy
Diltiazem
Botox June 13
Nitro
Internal flap July 14
EUA and polyps removed Nov 14
Diagnosed with neuropathy Jan 15
Diagnosed with HS EDS type 3 (causes poor wound healing )
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Re: 3rd Surgery not worked

Postby Lloyd31 » 30 Apr 2015, 15:56

Pic was at 5 weeks now the bleeding has completely stopped. Still open dry wounds x 3 but not healing

I know I'm just one of many! I'll google it
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Re: 3rd Surgery not worked

Postby Lloyd31 » 14 Dec 2015, 20:12

Update - it was a fistula!! I had an apple size abscess removed!! Life is so good now!!! It's amazing what an MRI shows up!! 4th CRS actually knows what he is doing!!
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Re: 3rd Surgery not worked

Postby chachacha » 14 Dec 2015, 23:12

What amazing news! I'm so terribly happy for you!

And thanks so much for coming back to let us know.

:Rock:
Fissure since about 2007
Fissure diagnosed in 2011
Diltiazem for two years - didn't work well
LIS January, 2015
Hemorrhoidectomy December, 2017
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