Chronic AF

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Chronic AF

Postby aryanne » 24 Jan 2013, 07:26

Hi.
Iґm new to this forum - female, 33 years old, no children, always been in normal weight, with sedentary lifestyle due to school years and everyday work, never had anal sex or never will as this area of my body is so hypersensitive.
I have been suffering from chronic AF already for 18 years. It all started with no apparent reason when I was 15 years old, I have seen better times and worse times, I guess the anal gap also developed already then, it has been there for many years. I struggled years before I dared to visit the doctor. I have been seeing 2 different proctologist to have a second opinion and treatment styles. But nevertheless during the last 8 years they have not been able to help me to heal from AF completely. By their opinion there is nothing much else to be done, they do not recommend surgery as my condition "is not so serious", I have had numerous courses with all the existing suppositories, creams, pastes in our market, the food supplements to regulate my digestion etc. I have managed to avoid constipation making changes in diet, but still the doctor says that the mucosa in my rectum is so delicate, AF is healing up to some point and is always coming back.
Anyway, though Iґm in better state than I was years before, it seems that there is nothing else to be done, at least in my country (Estonia, Europe) and I have started to look around how AF-s are treated elsewhere. Iґve read about lasers, botox treatment and so on. My doctor doesnґt recommend anything such, but says that this problem will stay with me, that I have to accept my situation. Which I find difficult to do.
Our family has a history with gastrointestinal cancers (my mother, grandfather, grandmother) and Iґm afraid that this chronic irritation and distress may lead to polyp(s) which may lead eventually to cancer. I hope it hasnґt so far and Iґm thinking about colonoscopy, just to be sure. During the next years I would like to get pregnant and Iґm terrified how could pregnancy and child birth affect my AF.
If anybody can suggest how I could help myself, I would be most grateful as I have run out of any further ideas and so seems my doctor.
Thank you for listening!
A.
aryanne
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Re: Chronic AF

Postby delasama » 24 Jan 2013, 14:37

wow! i feel for you! i just starting the battle with mine. been three months. im supposed to see a gi specialist soon. im sure having a baby could make it worse, but i would talk to a specialist about that and theres always sea sections?
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Re: Chronic AF

Postby mkotb » 25 Jan 2013, 15:25

Hi everybody, I am a 28 year old female..suffering from a fissure for the past 2 years...i am a vegetarian ....and use to eat a very healthy diet like brownrice, whole wheat bread and whole grain cereals, fruits, veggies but sometime when i cannot fully flush my system i use to put pressure so as to clean my bowel....apparently that had lead to a fissure...i first noticed some blood on my stool and pain in the anal area..also noticed a small lump around anus...i did tons of reasearch...thought it to be a hemorrhoid bought so much of stuff to try like hemclear, prep H, too many fiber supplements like metamucil, equate etc etc..though they helped with softer stools it use to flare up every now and then...recently i went to another gastro doc....he examined with a gloved finger and decided no necessary to check with the anuscope..he said all he could see is a skin tag left from either an external hemorrhoid or an anal fissure...he sent home saying just follow the fiber diet i have been doing and then just leave it and take laxative whenever i eat some junk food...thats really not the cure i am looking for....i am totally devastated with this life style..i wont go out and meet friends and i literraly have to plan on each and every thing i put in my mouth....and worst of all, sometimes it flares up for no reason, i eat quinoa daily and lots of fruits, veggies, lentils, 3-4 litres of water a day. today i had blood on my stool and lot of pain around the tag. I ate lots of veggies yesterday...sometimes its like the very stool will be hard that it opens the healed wound followed by very softer stools..i dont understand this....it pains near the skin tag..so i think that its definitely the fissure which is not healed...the tag also shrinks over time and almost goes inside during night and comes down after BM....i use coconut oil to lubricate the area but still it does not help from breaking down...can somebody please suggest whats going on...i don't want to see an other doctor...already been to couple of them... every time i go to check up, it literally re tears my fissure and they are of least helpful in showing me a solution....I cancelled all the vacation plans and i get scared to go out and eat with friends....i wish i could get my sweet life back...and i hardly see it coming in my way....please help...
Last edited by mkotb on 05 Feb 2013, 15:13, edited 1 time in total.
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Re: Chronic AF

Postby delasama » 25 Jan 2013, 15:45

just keep up that heathy soft diet.no pasta or cheese! im still waiting to see a gi specialist. i dont have insurance though. i feel your pain
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Re: Chronic AF

Postby Savaici » 25 Jan 2013, 18:08

Hi Aryanne, and welcome to the group!
It is very difficult to say, when you have been suffering for so many years, what is the best thing to do. You seem to be doing a lot already, and we are a few who do not find a solution.
Having a colonoscopy will, I am sure, at least put your mind at rest when you have a family history of gastrointestinal cancer, so I would go ahead with that. You do not say if you are seeing a Colon and Rectal Surgeon, but, if not, I would see if you can get an appointment with one as CRSs are the experts when it comes to AFs.
Where it comes to pregnancy, I would suggest that you speak to a gynecologist as they would be the best for advice on this.
18 years means, I should imagine, that you have considerable anal scar tissue and really think a CRS is the best person to see and get advice from.
Image You will find a lot of reading material on here and many helpful people. Good luck and keep in touch and let us know what you decide.
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