My last vent

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My last vent

Postby hurtinend » 27 Jul 2019, 16:21

I've been on this board for over a decade so I won't go into my long history.

Long and short is I had a fissure many years ago that eventually healed on its own. A recent colonoscopy in February confirmed no fissure.

Bottom line is my rectal pain is worse than it's ever been....seering burning spasm, it doesn't go away, it lessens some at night only to start next am. No blood, nothing visual can be seen.

I'm past the end of my rope. My GP prescribed morphine because my pain was so bad I was dripping in sweat one day and my sister freaked out and took me to my doctor. Even that does not completely kill the pain.

I am scheduled for an epidural nerve block as I'm told it's likely a nerve gone wild (I don't hold out much hope as I've had 2 previous pudendal blocks that didn't help). I'm scared I'm debilitated from the pain I've had dark thoughts, they are getting black. Can't even walk or sit without high levels of pain.

Currently on Morphine, Gabapentin and Cymbalta
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Re: My last vent

Postby Okaybum » 27 Jul 2019, 18:47

I wonder if an lis would help ease the spasms or Botox? Something to ease the obvious tension and spasms that are ongoing? Have you had your resting pressure tested? I swear I read somewhere that a lady had a healed fissure, still had pain, they did an lis and it fixed her.
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Re: My last vent

Postby hurtinend » 27 Jul 2019, 19:25

that would require a referral to a CRS. I can’t get one.
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Re: My last vent

Postby Okaybum » 27 Jul 2019, 19:50

Why can't you get one? I went in and just asked. I said it was for a fissure and I wanted to see a specialist. I made them write it to a specific person. It was not my usual doctor as my usual had left but I got it.

Not sure how old you are but you can take the route of I need a colonoscopy because I believe I have a family history of bowel cancer or lie and say you have mysterious rectal bleeding. I'm surprised that you don't have a crs giving you your spinal. It's a colon/rectal disorder.


Actually I didn't ask. I told them what I wanted. He offered sitz baths and creams (first general practitioner to say anything valuable for treating fissures I was surprised but stood firm in my demand and was ready to start sobbing if they questioned me. He had to hand write the referral because he couldn't find the lady I wanted. I had my surgery, but as a public patient I got a random crs and not the lady I wanted
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Re: My last vent

Postby dmcff » 28 Jul 2019, 02:23

I'm hesitant to add my voice here, as people are different -- what helps one person may not help another, and there is always the danger of giving the wrong advice.

What I have found over several years is that there are certain areas of medicine that remain almost uncharted, where the doctors have few or no conclusive answers - and pelvic and colorectal disorders seem to come under this heading.

While there are various causal explanations for rectal pain, there are few or no decisive ones, and we are often left with the problem of pain as such. Doctors are in general not interested in persistent and long-term pain - it defies and runs counter to their fundamental mission of healing and curing; see this link on How Doctors Respond to Chronic Pain.

The problem also lies in the fact that Pelvic Floor Dysfunction (PFD) remains a shadowy area of therapeutic treatment, vying with conditions like fibromyalgia, chronic arthritis and other central pain syndromes for a status where the pain literally becomes its own disease.

I am very sorry to hear of your pain and distress, and hope that you can find professional help that suits you and meets your needs. In my own case, I have found that regular sessions of psychotherapy (now once a week) contribute quite a bit to inner stability and peace of mind, but it has been a long struggle, and I am not yet entirely free of the pain and discomfort of this wretched condition. Good luck.

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2014 Anal fissure
2015 CAT scan, EUA and sigmoidoscopy, 2 MRI scans - 4 hospital stays - severe to low pain
2016 Anal fissure - pain severe then moderate to low
2017 Return of moderate pain
2018 Physiotherapy, pain management
2019-20 Just living with it
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Re: My last vent

Postby hurtinend » 28 Jul 2019, 16:11

I had a colonoscopy in February....no fissure just one benign polyp removed. as fate would have it my pain is worse than ever now. I have a long history with this pain and doctors think it's all nerve related.

I'm getting a caudal epidural nerve block end of August.

I really think I have Levator Ani Syndrome, but my pain doesn't come on and leave, it's there all the time.
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Re: My last vent

Postby Okaybum » 28 Jul 2019, 16:23

I'm so very sorry and I'm hoping that this epidural works for you. How long does it last?
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Re: My last vent

Postby Bolex » 29 Jul 2019, 02:08

Hi I recently visited a top colorectal physio due to the most severe symptoms been told my chronic anal fissure has caused a chronic pelvic dysfunction and pudential neuralgia . I have been taught how to re egage the correct muscles to open my bowels . I do breathing tension exercises to help relax the pelvic floor. Botox which I had helps to relax the anal sphicncter however it will not work on the surrounding pelvic floor muscles which become excessively tight mine are like stone on rectal exam when should be like sponges this means they impinge on the nerves .
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Re: My last vent

Postby Abu » 29 Jul 2019, 10:48

Hurtinend, good luck man, I hope you find relief after the procedure. Fingers crossed.
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Re: My last vent

Postby hurtinend » 29 Jul 2019, 16:38

Bolex wrote:Hi I recently visited a top colorectal physio due to the most severe symptoms been told my chronic anal fissure has caused a chronic pelvic dysfunction and pudential neuralgia . I have been taught how to re egage the correct muscles to open my bowels . I do breathing tension exercises to help relax the pelvic floor. Botox which I had helps to relax the anal sphicncter however it will not work on the surrounding pelvic floor muscles which become excessively tight mine are like stone on rectal exam when should be like sponges this means they impinge on the nerves .


Hmm thank you for this post it sounds exactly like what I have. I almost jumped off my balcony a few months ago. I cannot work and I’m living off lines of credit. I gave a lawsuit ongoing for disability

Can I ask you where this colorectal physio is located or can you shed any more light on your routine?
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