by shams1000 » 02 May 2015, 12:10
Svet et al., I have been dealing with AF since November 2014 [around 6 months]. I can tell you that I have been going back and forth
between feeling that I am completely over AF and have healed but then perhaps I get overconfident, eat somethings that I shouldn't be eating, and then there is bleeding. This has happened 3-4 times. Re: LIS, I just warn all AF patients out there to be careful with your CRS and be sure to get a second opinion. Some surgeons are too aggressive and want to get in there and fix things. Not sure if the motivation is truly to help or to add to their bottom line. In any case, DILT never worked for me but I switched to NITOBID cream which is a 2% cream and despite some headache, it's taken my pain from a 7-10 down to 1-2. I still experience burning but it is bearable and at least right now I am just sticking with a high fiber diet (I try fiber one cereal in the morning), Flax seed (1-2 spoons a day), lots of fruit and vegetables, good amount of water, but otherwise eat everything. I was on miralax initially, but that almost killed me - it gave me bad diarrhea. I also went on benefiber but I think it bulked up my stool too much. Any ways, this all requires experimentation as others have said. So, stick with a high fiber diet, use Nitro, and hope for the best .. and, some occasional bleeding is inevitable but hopefully with time, the frequency should decrease.
Hang in there