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compelling

Postby Sambouca » 09 Oct 2015, 04:09

I find it compelling that so many people are suffering from this illness (Hem or FIS) yet there is no cure for it.
I find it compelling that science and medicine had failed to offer a treatment that would stop people from suffering. It’s unbelievable. I am not sure if in other countries like Germany, France, Brazil or other; patients have to deal with this for as long as we do here in North America. All I hear is funding for this research, collecting donations for that, even animals have the ASPCA but I’ve never heard of any organization collecting funds for research to permanently cure Anal Fissure or Hemorrhoids! There is none I am willing to bet !

If for anything this whole forum is only pointing to a fact, fact is people out there are not finding a solution to this problem !
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Re: compelling

Postby hayleyw » 09 Oct 2015, 16:01

Well in the scheme of things it's not life threatening and there are treatments available. Surgery is basically a cure but of course it has side effects like the majority of 'cures' have. I don't feel as if there isn't enough treatment out there, there are creams, injections and surgical options. Fissures in that area are just so damn hard to get rid of but not for the lack of medicine trying.
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Re: compelling

Postby anniebee » 09 Oct 2015, 19:12

Sambouca, I have to agree with you. I have been in excruciating pain since June. I have tried everything and have been diligent. It may not be life threatening but it is life altering. After numerous visits to 2 doctors I was told there is not much they can do after exhausting all meds. Finally, I am getting referred to a specialist but that could be months. Will that even be productive? It has been a living daily h#ll for me and so many other people who had the misfortune of getting this horrible thing.
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Re: compelling

Postby Savaici » 09 Oct 2015, 20:14

There has been research carried out, and Diltiazem and Nifedipine are relatively new products of this research, hence the fact that in the US (at least) these ointments are only available from compounding pharmacies. Also, Rectiv is a relatively new product on the market here. There is just not that interest in it, but I am sure that if some cure was available, it would be out there pretty fast. The Gold Standard is still LIS.
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Re: compelling

Postby anniebee » 09 Oct 2015, 21:09

Thank you SavaIci.I have done both ointments as well as nitro gel.I have read medical studies on all of them. Yes, only compounding pharmacies put these ointments together and I think it maybe it's random on how well they work. Here I am, months and months later screaming in pain. I do find that both docs did not know a lot about this and they both admitted it. From this forum, I actually had more info than my docs had. They did not even know where to send me and I am convinced that I am not being sent to the right place. I am being sent to a general surgeon and not a CRS. I just want my life back as many on here can agree. Life put on hold. It's awful for all of us.
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Re: compelling

Postby Sambouca » 10 Oct 2015, 03:31

There is no efficient treatment nor is surgery a good option. In reading this forum it seems that LIS success rate is limited.
I honestly do not believe that the surgeons out there are telling the truth about its likelihood of success. If they do no one would want a surgery.
Problems in the Anal canal originate form two things, pressure and sensitivity to friction/contact of some sort PERIOD. Medication, Treatments and other deal with the first but not much is done about the second, other than hydrocortisone acetate, Analpram and some other inefficient stuff.
If we rate these doctors based on the end result they would all get an F
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Re: compelling

Postby Savaici » 10 Oct 2015, 11:49

Most of our over 4,000 members have had LIS (I have not), and as about 99.9% are no longer here, I would not knock it. So, I do believe the research and the almost 90% success rate and would never discourage anyone not to have the surgery done.

For a CRS, this surgery is small cheese in comparison to dealing with such cancers that arise in the area and the colon. I healed myself through dilation, but whatever someone chooses as the way to heal this blight on our arses (except crackpot unctions) I would say go with it, and if you choose surgery, make sure you choose an experienced surgeon.

Good luck to you, whatever you choose to do.
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Re: compelling

Postby Sambouca » 01 Nov 2015, 22:51

I've already had one and I must be very unlucky OR maybe statistically part of the 0.01% as the very many others in here. I could disclose more details, point to the top notch surgeon that I had and the top notch facility that I used but I am not sure if this forum guidelines and rules allow it !!
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Re: compelling

Postby Savaici » 02 Nov 2015, 14:22

Sorry that yours was a failure, Sambouca. Perhaps your surgeon (hope he/she was a CRS) was too conservative. Hope you got your records so that you can see exactly what was done. I did not have surgery; did dilation, and that has worked for me, though my rear end will never be normal, so to speak.
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