by NeuropathicGuy » 17 May 2011, 22:55
Hello all,
I used to be very active on these boards. But I haven't had much time to participate lately since life has thrown a few curve balls :( But it's now just over one year since I had LIS, so I wanted share my overall impressions now that I've got some distance between my fissure days and the operation. Hopefully this will help those of you who are deciding whether to pull the trigger or wondering what some of the ups and downs might be. I've tried to break things down into sections based on the most common questions and keep it as concise as possible. My goal is not to be for LIS or against LIS. It is just to give you my impressions without any BS or filters, just the straight dope.
MY FISSURE HISTORY
First, a brief background. I got my fissure in summer of 2009 after diarrhea and constipation from antibiotics. I tried all manner of creams and ointments, including nifedipine, diltiazem, plus nitroglycerin. They brought some measure of relief, but none healed the fissure. I also tried Botox injections, which fully healed the fissure for several months. But eventually it returned.
So after one year of messing around, I decided that enough was enough, and finally had LIS (closed limited without skin tag removal or fissurectomy) on May 3rd of 2010. The operation itself was largely unremarkable, but I developed a perianal abscess as a complication. So just two weeks later on May 14th of 2010, I had to go in for a second operation to drain and debride the abscess. Not fun, but hey, you've gotta do what you've gotta do.
AM I GLAD I HAD LIS?
Yes. No question here. My fissure had toyed with me for long enough. I'm glad I went through with the operation, and would do it again knowing what I know now.
But I would temper my expectations as far as recovery timeline, whether I expect to achieve a complete recovery, etc. More on these below.
AM I NOW 100% BACK TO MY PRE-FISSURE LIFESTYLE?
No. And I don't think I ever will be. I still take Miralax every day, and I plan to do so indefinitely.
I can no longer eat junk food all day with very little water intake and get away with it. I can't drink beer to the point of excess, I can't eat very spicy foods, and in short I can't simply eat with reckless abandon like I used to. If I do -- and believe me, I've done so at times due to overconfidence -- then some butt problems will return. For instance, I will get bad irritation or some blood on the toilet paper. It seems that the area remains more sensitive than normal once it's been through trauma (it's fair to note that I still have hemorrhoid flares from time to time which doesn't help things).
CONTINENCE
This is the big question that's on everyone's mind going into LIS: will I become incontinent? In general, this is not something I would advise dwelling upon going into LIS. I know it's hard, but it's truly not a big concern.
So what's the answer to the million dollar question then: has my continence been affected? 99.99% of the time, the answer would be no, not at all. But if pressed, I would have to say yes, but very, very, VERY mildly, and only in certain situations.
I want to be clear: I'm not pooping my pants. Turds are not randomly slipping out into my underwear of their own volition. And I'm not uncontrollably farting during company meetings.
When I say that my continence seems to have been affected ever so slightly, here's what I mean... When I get diarrhea, it feels like it's harder to hold in, like the urgency is greater. Also, if I have several watery stools in a row, there's a good chance that some very slight "leakage" (think of a "skid mark" volume wise) will be present minutes later, even if I wiped real good the first time. Finally, not to be overly graphic or juvenile, but the chances of a "wet f@rt" seem to be higher than they used to be.
Disclaimer: I can't say that some of this isn't due to Miralax usage. I know others have reported anal leakage when using Miralax. But in my case, I doubt Miralax is the culprit, because I'd been taking Miralax long before I had LIS and never observed any of this.
SUMMARY
The key takeaway from all this, I think, is #1 that if you're considering LIS, there's probably a pretty good reason for it. You've probably tried conservative measures already and they've failed. You're probably trying to make peace with the idea of going through with surgery. You're probably worried about incontinence. Try not to focus too much on any of those -- if you're considering LIS, odds are very good that it's the right choice. While LIS isn't perfect, very few people come out worse because of it.
That having been said, be aware that the procedure isn't bulletproof. It can fail, and it can have complications. And while some people recover very quickly, many take much longer. If your surgeon says you will be fine in a week, that's something to hope for and shoot for, but I would strongly recommend making backup plans in case that doesn't come to fruition. For many people, it doesn't. Give yourself ample time to recover! If that means months, then that's okay. You're not alone. Many of us takes months and months to recover. It was at least 6 months (and probably closer to 8 or 9 months) before I felt anything close to what I'd call "mostly recovered." I had setbacks along the way, but overall I slowly made forward progress.
And some people are able to return to their previous lifestyles after LIS. Some aren't. I would say that more people are able to return to their old pre-fissure lifestyles than not, so the odds are probably in your favor. But don't be totally surprised if you still have to be very careful with your diet and butt even after surgery.
Oh yeah, and what CRS's say is true: don't use soap on your butt when showering or bathing! I always thought that was the weirdest piece of advice. But it really is true. Since my fissure and LIS, I've noticed that washing my butt with soap really does irritate it. It took some firsthand trial and error to convince myself, but now I'm a believer. Soap dries out the skin and makes it more prone to get chafed and bleed when wiping with toilet paper. Try it with and without soap and you'll see.
Ok I'm starting to ramble on now so I'll end this here. I hope my impressions have been useful, and that I've neither scared anyone away from surgery nor made anything think it's the magic bullet they've been looking for. It all really depends. Overall I'm happy I did it, but wish I'd have known more about what to expect ahead of time.
If you have any questions, please feel free to ask.