Alone and in pain. Looking to talk.

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Alone and in pain. Looking to talk.

Postby mike1971 » 17 Jun 2018, 16:05

Had another painful flare up this morning.

Alone and scared.
mike1971
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Re: Alone and in pain. Looking to talk.

Postby hurtinend » 17 Jun 2018, 18:06

try to hang in there

I have had chronic rectal pain for years, lately it’s at it worst and unbearable

hot baths hep. I’m seeing a specialist tomorrow but I’ve been down that path many times with no answers

I demanded some painkillers and Ativan from my family doctor recently. It helps if really necessary.
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Re: Alone and in pain. Looking to talk.

Postby mike1971 » 17 Jun 2018, 18:14

Thanks. How do you manage for years?

I'm at 4 months and I'm beat. I'm tired and worn out.

Afraid to go to the bathroom. Tired of sitz baths.
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Re: Alone and in pain. Looking to talk.

Postby hurtinend » 17 Jun 2018, 18:19

I’m at the end of my rope to be honest. This thing came and went but it’s been constant pain for the last 6 months, that’s when I opted for pain and stress management from my doctor.

The medical system is so slow and bogged down it’s maddening
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Re: Alone and in pain. Looking to talk.

Postby mike1971 » 17 Jun 2018, 18:38

I see you're in Canada. I'm Toronto (Markham).

Yes the medical system is terrible. I've been to the ER 6 times two different hospitals waited hours at a time to have a stupid ER doctor look at my bumhole and send me away with a prescription for pain killers.

Tomorrow I should be receiving a call from the hospital to arrange an apt for MRI. It took my surgeon 2 months to get around to it.

I don't know how long this wait will be.
mike1971
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Re: Alone and in pain. Looking to talk.

Postby hurtinend » 17 Jun 2018, 18:39

Have you had a colonoscopy?

That’s the next thing for me
hurtinend
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Re: Alone and in pain. Looking to talk.

Postby mike1971 » 17 Jun 2018, 18:50

I had arranged to see a surgeon with my family doctor for a colonoscopy.

While I was waiting I came down with a perianal abscess which burst and turned into 2 fistulas. When I went to see the surgeon for the colonoscopy I had to explain what had happened. We arranged for an EUA and fistulotomy.

So no colonoscopy.

I'm in no condition to have one at this moment.
mike1971
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Re: Alone and in pain. Looking to talk.

Postby mike1971 » 17 Jun 2018, 18:56

Are you having fissure pain?

What is the pain like?

When does it happen?

How long does the pain last and how often?
mike1971
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Re: Alone and in pain. Looking to talk.

Postby hurtinend » 17 Jun 2018, 19:20

It’s a deep burning/ache/spasm...it’s a slightly different pain than when I was diagnosed with a fissure 10 years ago

No pain with bm, the pain starts after, usually 2 hours after and lasts most of the day, calms down a bit at night thank god

I’ve been told my pelvic floor is in spasm, and the rectal muscles don’t relax after bm.
This also affects my bladder, it spasms as well so it’s a double whammy of pain.
hurtinend
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Re: Alone and in pain. Looking to talk.

Postby mike1971 » 17 Jun 2018, 19:41

Yes! This is the closest description I've come across that explains my pain.
mike1971
Proctosphincteranalogist
 
Posts: 238
Topics: 14
Joined: 27 May 2018, 14:39
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