Any remedy for the permanent foul smell in the groin region?

I HATE the soiling of underwear and the everpresent foul odor

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Any remedy for the permanent foul smell in the groin region?

Postby PainInTheBehind » 22 Feb 2016, 09:37

After three years of living with AF I joined these forums today, and have posted my intro here. Wanted to discuss a more specific topic: odor management.

I don't know if soiling of underwear is a common theme with AF, but I've had it after I got my condition. Before then there was NEVER any bad smell or soiling (I am a Monk-level germophobe and hygiene freak). I always wash and scrub with soap during my daily shower, and after each BM I use up 30 pieces of toilet paper (slightly dampened). The problem is that during the course of the day there is leakage and I can't clean every twenty minutes.

I don't think masking the smell with colognes etc will help much, or is even advisable :dunno: . Is there some safe way of nullifying the smell? I believe that since the source of the odor is the leakage, the only solution will be complete healing of the fissure :~!@: . However any workaround that can reduce or eliminate the smelly problem will be much appreciated 8)
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Re: Any remedy for the permanent foul smell in the groin reg

Postby Savaici » 22 Feb 2016, 11:43

:wel: to the Forum. Presumably you have researched this thoroughly and know that you don't have a fistula? Have you been seeing a CRS for everything? If not, i would definitely make an appointment and ask what can be done. Don't just suffer through and put up with it. I use sterile dressings when I clean, and only water. Expensive but worth it for me.

There are lots of posts that refer to 'smell' on the forum, but no specific topic that comes up when I do a search. If you search, use the one above between FAQ and Portal where you can search in various ways, including by topic.
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Re: Any remedy for the permanent foul smell in the groin reg

Postby Savaici » 22 Feb 2016, 12:01

Try looking at this link, too. I know it's for Crohn's Disease, but might have some suggestions. :sunny:

http://www.crohnsforum.com/showthread.php?t=9355
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Re: Any remedy for the permanent foul smell in the groin reg

Postby PainInTheBehind » 22 Feb 2016, 14:06

Hi Savaici, thanks for the welcome and the tips.

Yes, I did perform a search on "smell" before asking this question. Nothing came up that I could relate to, though. That link you gave to the Crohn's forum is full of useful info I haven't considered before.

I do have another appointment with my specialist this week, and I will ask about the prognosis of the condition and if something like a specific diet (as stated in the Crohn's forum link) can be useful.
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Re: Any remedy for the permanent foul smell in the groin reg

Postby JHH » 22 Feb 2016, 14:52

Hi PITB

Im afraid the leaking is caused by one or both of the sphincterotomies you had. It's a known sideeffect of LIS. Try a search for leaking or soiling, maybe you will find some tips to manage it.

Best of luck!

JHH
- Fissure developed in Jan '13
- Started rectogesic in Feb '13 and diltiazem Apr '13.
- Got botox Jun '13
- Healed by Okt '13, although I still had some irritation for about a year.
- Now Feb '16, all is good. Still take magnesia, and squat precautionary.
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Re: Any remedy for the permanent foul smell in the groin reg

Postby PainInTheBehind » 22 Feb 2016, 19:44

I had discussed the leakage with my CRS before getting the latest spinchterotomy and he had said that it should go away with time. It is not improving as quickly as I would like and I hope he will have some better answers when I next meet him.

In general does such a leakage due to spinchterotomy get better with time, or will it always stay given the nature of the incision never healing completely?
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Re: Any remedy for the permanent foul smell in the groin reg

Postby Savaici » 26 Feb 2016, 13:19

PainintheB,

These are some specific posts re "leakage due to spinchterotomy" on google that you might like to look at, if you have not seen them already.

http://www.google.com/search?q=leakage+ ... ent=safari
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Re: Any remedy for the permanent foul smell in the groin reg

Postby PainInTheBehind » 28 Feb 2016, 06:36

Thanks Savaici, I looked up that google search and the first PDF that comes up could be useful in strengthening the spinchter. However I will ask my doc first if I should do that, since the very point of a spinchterotomy is to relax the muscle.

By the way after my latest checkup the doc found that I have hemorrhoids as well now, and a small fissure. Yay me! So now I have a minor procedure scheduled to clear away the hemorrhoids. Doc says once they are gone the leakage should go away as well. Let's see.
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