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Back again

Postby JHH » 17 Apr 2022, 06:52

Well yeah. It happened again, so I'm back.

I would like to say hello to all the new people in here, and give a warm hug to all the people who helped me with support the first time around.

I have been going pretty good for the past many years, without worrying about my butt, and I guess I have been taken my pain free but for granted. I stopped all stoolsofteners years ago and just lived my life.

Then, 1st april I tore. I felt it and and saw blood in the toilet. A bit larger and a bit harder BM than usual and I wasn't careful enough.

Given my history I immediately went back on stool softeners and got hold on rectogesic. I managed to improve my situation until this morning . Now, 14 days later I retore. Dammit.

This time around I'm not going to spend as much time in pain as last time, so I will give rectogesic 2 months to work, and then ask for Botox. Then 3 months for Botox to work, or I will go for LIS.

Anyways. I'm back for now, so if you need help or support, please just reach out!

Remember, there are better days ahead, so stay strong!

JHH
- Fissure developed in Jan '13
- Started rectogesic in Feb '13 and diltiazem Apr '13.
- Got botox Jun '13
- Healed by Okt '13, although I still had some irritation for about a year.
- New fissure April '22, healed June 2022
- New fissure 24. December 2023
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JHH
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Re: Back again

Postby dhc » 17 Apr 2022, 09:58

So sorry to hear. I still find it hard to believe how much it hurts. I wonder if anyone who has not experienced AF can imagine the pain. Do you have support from your family/friends?
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Re: Back again

Postby JHH » 17 Apr 2022, 14:29

Hi there dhc.

Thanks for your reply
I'm pretty sure, only people who have went through it, can relate to the pain we experience. It is so out of proportion to a little fissure anywhere else on our bodies.

I have both my family and this forum, so I can't complain. How about you, are you covered on that front?
- Fissure developed in Jan '13
- Started rectogesic in Feb '13 and diltiazem Apr '13.
- Got botox Jun '13
- Healed by Okt '13, although I still had some irritation for about a year.
- New fissure April '22, healed June 2022
- New fissure 24. December 2023
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JHH
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Posts: 785
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Joined: 22 Feb 2013, 17:00
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Re: Back again

Postby dhc » 18 Apr 2022, 13:05

That is actually a bit of a problem. My wife has a hard time understanding how this can be going on for 3 months and yet I still am in acute pain. I don't really blame her. If I had not experienced it, I doubt I could understand it. And I am still amazed that the medical profession has so little to offer. Practically nothing to help with pain control.
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Re: Back again

Postby JHH » 18 Apr 2022, 16:15

Yeah, we can cure cancer, but not a small tear in the butt

I find heat works better than painkillers. When really bad, I sit with my butt in hot water or just use a waterbottle with hot water in. Another trick is a go for a drive with the seatheater turned all the way up.

Only morphine helps the pain, but since it causes constipation, thats out of the question.
- Fissure developed in Jan '13
- Started rectogesic in Feb '13 and diltiazem Apr '13.
- Got botox Jun '13
- Healed by Okt '13, although I still had some irritation for about a year.
- New fissure April '22, healed June 2022
- New fissure 24. December 2023
User avatar
JHH
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Posts: 785
Topics: 16
Joined: 22 Feb 2013, 17:00
Location: 6 o'clock
Has thanked: 48 times
Been thanked: 70 times
Gender: Male

Re: Back again

Postby JHH » 30 Apr 2022, 05:07

Another 14 days and another retear this morning. Was just doing better, but now back to square one. Stool wasn't even hard, just a bit more formed than usual. Impossible to control 100%. Arrrgghh.

JHH
- Fissure developed in Jan '13
- Started rectogesic in Feb '13 and diltiazem Apr '13.
- Got botox Jun '13
- Healed by Okt '13, although I still had some irritation for about a year.
- New fissure April '22, healed June 2022
- New fissure 24. December 2023
User avatar
JHH
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Posts: 785
Topics: 16
Joined: 22 Feb 2013, 17:00
Location: 6 o'clock
Has thanked: 48 times
Been thanked: 70 times
Gender: Male

Re: Back again

Postby dhc » 30 Apr 2022, 09:07

So sorry to hear! Hard to understand how that could happen with all that you are doing. Thinking of you and wishing the best for you.
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Re: Back again

Postby JHH » 27 Dec 2023, 07:05

Guess I should post an update again..

Back in 2022 I was able to heal my fissure in a few months just using rectogesic and by controlling my diet. After a few weeks pain was only like 2/10 and then slowly got less and less.

However, 3 days ago I tore again. Pain is around 5/10 for hours after BM. Again back on rectogesivc stool softners and my fissure friendly diet. I will give it 6 weeks and if not healed I will ask for botox.

Wishing everyone healing power and happy Christmas!
- Fissure developed in Jan '13
- Started rectogesic in Feb '13 and diltiazem Apr '13.
- Got botox Jun '13
- Healed by Okt '13, although I still had some irritation for about a year.
- New fissure April '22, healed June 2022
- New fissure 24. December 2023
User avatar
JHH
Moderator
 
Posts: 785
Topics: 16
Joined: 22 Feb 2013, 17:00
Location: 6 o'clock
Has thanked: 48 times
Been thanked: 70 times
Gender: Male

Re: Back again

Postby chachacha » 27 Dec 2023, 11:15

Very sorry to hear that you're suffering with a fissure again. I really love your decision to act swiftly and with precision with regard to your treatment plan. Fingers crossed that this one heals up quickly too, and you don't have to take any "next steps".
Fissure since about 2007
Fissure diagnosed in 2011
Diltiazem for two years - didn't work well
LIS January, 2015
Hemorrhoidectomy December, 2017
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Re: Back again

Postby JHH » 03 Jan 2024, 11:10

Thank you, appreciate it!

Was doing better and better until yesterday. Was having painfree BM's and only slight pain during the day.

But, yesterday I retore as my stool got harder. Had hard stool again this morning and I'm back in pain. Pain during BM's and pain for hours after.

Talked to my doc, and will be reffered to a possible botox treatment. Not going to put up with this for half a year again...
- Fissure developed in Jan '13
- Started rectogesic in Feb '13 and diltiazem Apr '13.
- Got botox Jun '13
- Healed by Okt '13, although I still had some irritation for about a year.
- New fissure April '22, healed June 2022
- New fissure 24. December 2023
User avatar
JHH
Moderator
 
Posts: 785
Topics: 16
Joined: 22 Feb 2013, 17:00
Location: 6 o'clock
Has thanked: 48 times
Been thanked: 70 times
Gender: Male


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