Long time sufferers pls share your experience

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Long time sufferers pls share your experience

Postby SurvivorX » 27 Jan 2017, 11:02

Long time sufferers pls share your experience.
Does it get better with time?
Myself Ive been suffering for 3 years now and it doesnt get better at all - I had a succesful LIS but chronic pain is after me each and ever day.
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Re: Long time sufferers pls share your experience

Postby patience_and_healing » 10 Apr 2017, 21:52

Hey SurvivorX, hope you are doing better since your last post! Yours sounds like a terrible and painful journey. So sorry that you suffered so much all this time.
8/16-12/16: Fissure due to antibiotics
5/17: Botox to sphincter, fissure healed
9/19: Trigger point injections and pudendal nerve block
11/19: Botox to pelvic floor
8/20: Botox to pelvic floor in new location.
Currently in pelvic physical therapy
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Re: Long time sufferers pls share your experience

Postby Mypoorbutt » 11 Apr 2017, 04:13

Is your fissure still active because LIS is not the last option there are other things to try if your not healed.
I had LIS 5 months ago and am mostly pain free I have bad days but that's linked to others issues and after multiple BMs my pain and spasms come back.
Hope you can get to see a CRS as no one should have to be in pain
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Re: Long time sufferers pls share your experience

Postby SurvivorX » 12 Apr 2017, 20:44

Thank you for the kind words guys.
Important thing is to keep fighting everyday. For a couple of times I almost gave up my wife and baby boy kept me going.
I heard that there are people suffering from this pain for 10 or more years and although my fissure is not active pain is coming from the damaged nerves after 6 operations. I really hope and pray for me to get through this and for all of you too.
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Re: Long time sufferers pls share your experience

Postby patience_and_healing » 12 Apr 2017, 22:57

Did you go through 6 LIS operations? In that case no wonder you are so miserable! Have you tried gabapentin for the nerve pain? Some people on this forum have had a good reduction in pain after using it.
8/16-12/16: Fissure due to antibiotics
5/17: Botox to sphincter, fissure healed
9/19: Trigger point injections and pudendal nerve block
11/19: Botox to pelvic floor
8/20: Botox to pelvic floor in new location.
Currently in pelvic physical therapy
patience_and_healing
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Posts: 988
Topics: 37
Joined: 24 Feb 2017, 15:46
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