Movicol (macrogel) now making me bloated - advice?

alternative to movicol

Discuss any questions, problems or share your solutions here...

Return to General Anal Fissure Discussion



Movicol (macrogel) now making me bloated - advice?

Postby SueMac » 14 Feb 2020, 11:08

Hello everyone, how are you all doing? Just to note that I lost my login to the forum and when I googled I could not find the support forum page at all. I don;t know how you contact admin but perhaps we need to be making this appear in google searches a little easier?
Eventually I found an email from the forum when I set up my account.
So if anyone knows how to contact admin please let me know!

Been on movicol for months even a year but seems recently to make me now bloated, windy and need to go more often Maybe three times a day. BM make me sore I like to keep to one a day. I have the chocolate flavour at the moment. I like the taste but wonder if the flavour could be the cause of increased bloat/wind/urge to go? Any ideas would be fab.
SueMac
Proctosphincteranalogist
 
Posts: 336
Topics: 7
Joined: 03 Dec 2018, 13:03
Location: UK
Has thanked: 10 times
Been thanked: 19 times
Gender: Female

Re: Movicol (macrogel) now making me bloated - advice?

Postby dmcff » 14 Feb 2020, 12:39

The flavour shouldn't have any particular effect - maybe try reducing the dose or even skipping a day's dose if you are taking the Movicol on a daily basis?

Glad you were able to make it back to the forum!
2014 Anal fissure
2015 CAT scan, EUA and sigmoidoscopy, 2 MRI scans - 4 hospital stays - severe to low pain
2016 Anal fissure - pain severe then moderate to low
2017 Return of moderate pain
2018 Physiotherapy, pain management
2019-20 Just living with it
dmcff
Moderator
 
Posts: 329
Topics: 37
Joined: 07 Jul 2015, 08:49
Location: Kent, U.K.
Has thanked: 63 times
Been thanked: 39 times
Gender: Male

Re: Movicol (macrogel) now making me bloated - advice?

Postby SueMac » 15 Feb 2020, 07:28

Thank you. I’m trying fybogel instead to see if this might help reduce the bloat.
How are you doing?
SueMac
Proctosphincteranalogist
 
Posts: 336
Topics: 7
Joined: 03 Dec 2018, 13:03
Location: UK
Has thanked: 10 times
Been thanked: 19 times
Gender: Female

Re: Movicol (macrogel) now making me bloated - advice?

Postby dmcff » 15 Feb 2020, 13:16

I'm going reasonably OK, I guess. I've grown used to living with the discomfort of this condition, and don't give it much thought any more. It would be nice to live without it, but at 75 I'm lucky to be here at all!
2014 Anal fissure
2015 CAT scan, EUA and sigmoidoscopy, 2 MRI scans - 4 hospital stays - severe to low pain
2016 Anal fissure - pain severe then moderate to low
2017 Return of moderate pain
2018 Physiotherapy, pain management
2019-20 Just living with it
dmcff
Moderator
 
Posts: 329
Topics: 37
Joined: 07 Jul 2015, 08:49
Location: Kent, U.K.
Has thanked: 63 times
Been thanked: 39 times
Gender: Male

Re: Movicol (macrogel) now making me bloated - advice?

Postby SueMac » 16 Feb 2020, 12:27

Are you on any medication dmcff?
SueMac
Proctosphincteranalogist
 
Posts: 336
Topics: 7
Joined: 03 Dec 2018, 13:03
Location: UK
Has thanked: 10 times
Been thanked: 19 times
Gender: Female

Re: Movicol (macrogel) now making me bloated - advice?

Postby dmcff » 16 Feb 2020, 15:08

Pregabalin, amlodipine (for BP) and macrogol - that's it.
2014 Anal fissure
2015 CAT scan, EUA and sigmoidoscopy, 2 MRI scans - 4 hospital stays - severe to low pain
2016 Anal fissure - pain severe then moderate to low
2017 Return of moderate pain
2018 Physiotherapy, pain management
2019-20 Just living with it
dmcff
Moderator
 
Posts: 329
Topics: 37
Joined: 07 Jul 2015, 08:49
Location: Kent, U.K.
Has thanked: 63 times
Been thanked: 39 times
Gender: Male

Re: Movicol (macrogel) now making me bloated - advice?

Postby patience_and_healing » 16 Feb 2020, 15:30

@SueMac: You can message pinpin for issues with your login. He's pretty good about replying. If not, I can share his email with you.
8/16-12/16: Fissure due to antibiotics
5/17: Botox to sphincter, fissure healed
9/19: Trigger point injections and pudendal nerve block
11/19: Botox to pelvic floor
8/20: Botox to pelvic floor in new location.
Currently in pelvic physical therapy
patience_and_healing
Moderator
 
Posts: 973
Topics: 38
Joined: 24 Feb 2017, 15:46
Location: California
Has thanked: 58 times
Been thanked: 116 times
Gender: Female

Re: Movicol (macrogel) now making me bloated - advice?

Postby SueMac » 17 Feb 2020, 06:15

Thanks patience- I haven’t heard about pinpin are they the admin person? Yes please to the email share could you pm me? Thanks so much
SueMac
Proctosphincteranalogist
 
Posts: 336
Topics: 7
Joined: 03 Dec 2018, 13:03
Location: UK
Has thanked: 10 times
Been thanked: 19 times
Gender: Female

Re: Movicol (macrogel) now making me bloated - advice?

Postby SueMac » 17 Feb 2020, 06:19

Dmcff after I sent that I thought it was a bit rude to ask what meds you are on! I meant for your fissure problems not in general as that’s a bit intrusive!!! So sorry. So do you think the pregabalin makes a difference? Reason I ask is that I’m on 60mg amiltripyline and have found some but not amazing benefit. My gp has says we can increase dose or there are other drugs we can try. I guess each person responds separately to a drug anyway if reviews online are to go on. How well tolerated are side effects on pregabalin?
SueMac
Proctosphincteranalogist
 
Posts: 336
Topics: 7
Joined: 03 Dec 2018, 13:03
Location: UK
Has thanked: 10 times
Been thanked: 19 times
Gender: Female

Re: Movicol (macrogel) now making me bloated - advice?

Postby dmcff » 17 Feb 2020, 07:35

No, not rude at all - amlodipine is the only medication I take that isn't connected with my AF. At first I wondered if it would clash with the other meds, but it doesn't.

Pregabalin has definitely made a difference to me and how I feel in general. I started on a fairly low dose, but am now on 300 mg a day - which isn't really all that high. The pregabalin takes the edge off the pain and discomfort, and quite often I feel almost completely pain free. I don't notice many side effects, apart from a slight muzzy-headedness in the early morning.

A few years ago I did try amitriptyline, but it didn't have much effect on me.
2014 Anal fissure
2015 CAT scan, EUA and sigmoidoscopy, 2 MRI scans - 4 hospital stays - severe to low pain
2016 Anal fissure - pain severe then moderate to low
2017 Return of moderate pain
2018 Physiotherapy, pain management
2019-20 Just living with it
dmcff
Moderator
 
Posts: 329
Topics: 37
Joined: 07 Jul 2015, 08:49
Location: Kent, U.K.
Has thanked: 63 times
Been thanked: 39 times
Gender: Male


  • Similar Topics
    Replies
    Views
    Last post

Return to General Anal Fissure Discussion



Who is online

Users browsing this forum: No registered users and 0 guests