My story. Giving this to solicitor today

Anal fissure story so far

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My story. Giving this to solicitor today

Postby Joey_f_2000 » 02 May 2014, 05:40

In June/July 2011 when 6 months pregnant my symptoms started. Severe pain passing stools and a lot of blood. Told it was haemorrhoids. I was in agony and was refused referral to specialist. Had the baby in October and the pain got worse. I researched to find I have an anal fissure. I told my go what it was and he confirmed a small tare. I knew treatment was stool softener and rectogesic and referral to colorectal surgeon. This was all refused and I was told to stop the stool softer et because it was irritating things and sent home with more haemorrhoids treatment!! After stopping softener, more visits to my gp, out of hours and a and e I was still refused referral. I was finally prescribed rectogesic but because I stopped the stool softener the tare got bigger and the pain became unbearable. I didn't want to live any more because of the stress and pain of it. I was admitted to hospital 27/12/11 and taken to theatre that day. The internal pile (diagnosed by gp) was actually a polyp and the fissure was very deep and had become chronic. That procedure didn't work and I underwent another surgery under general anaesthetic after waiting almost a year. Again this didn't work. The reason for the wait was because my consultant had left and rather than refer me to another they awaited another consultant to be employed. I was advised I shouldn't be waiting too long on my 3rd procedure, lateral internal sphincterotomy (LIS). I waited another year for this to be done, again because my 2nd consultant left and I had to wait rather than get referred to the other colorectal surgeon. The 3rd operation again didn't work because the fissure is so bad and deep. I'm now looking at more operations or living like this for years if not forever. Anal fissures are easily treated if caught early with the ointment and stool softener. Not only was I refused the treatment and referral but coming off the stool softener made the tear become bigger and more painful (not the small one initially diagnosed by Dr Connelly). The next go I saw after him told me my stools need to be really soft and got me back on the lactulose although still refused to refer me to a specialist. A and e doctors told me my pain levels did not match what they could see and said it's depression not pain! I was only crying because I was in so much pain and no one was listening to me or helping. The fissure became internal so they could not see it! A number of doctors during these visits gave me internal examinations even though I was in agony and my anus was in complete spasm, whilst I lay screaming out in pain. Doing internals whilst in spasm only aggravated the condition more. A and e finally referred me to see a specialist but I couldn't wait on the appointment and ended up being admitted as mentioned earlier. Surgery and pain has been the past 3 years and will be my foreseeable future. I feel today would be different if I had been treated in the beginning. I want to be able to work full time and do my nursing degree. Not be worrying if my next surgery is going to work or living in this pain every day. Each time they operate increases my chances if becoming incontenant, especially with the LIS. It's an awful way to live. My work attendance is suffering and so is my quality of life. I'm on anti depressants because of it. When in hospital in 2011 I needed pain relief on New Year's Eve. I had been getting morphine every 4 hours and was advised to stay on top of the pain rather than let it get on top of me. The nurse brought paracetamol even though I was rolling about in agony. She got snappy and rude to me and my dad and I waited a long time before finally getting the pain relief. A complain was filled regarding this incident. This whole process had been a living nightmare.
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Re: My story. Giving this to solicitor today

Postby Joey_f_2000 » 02 May 2014, 06:51

Has anyone else's LIS not worked?
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Re: My story. Giving this to solicitor today

Postby Ever the Optimist » 08 May 2014, 16:16

Hi Joey,
I'm sorry to read of your traumas with this all and truly hope things work out OK for you. No, LIS does not always work the first time and there are posts here of people having had his experience - the procedure may not have been carried out properly or not sufficiently for your needs. On saying this, it is generally a highly successful procedure for the majority but not always the case for an unfortunate few. Are you able to get an opinion on this from an alternative CRS? Can you see another GP? Your treatment sounds quite shocking and not particularly thorough in the earlier days, so I can understand your anger about your situation. Try to be assured that there will be a way out of all this for you at some point and one day, you will feel better again. That's pretty hard to believe when you hit the lows you do with such an issue and live in pain & discomfort on a daily basis but there is "life" after all this! It's not easy (they put me on ADs too to get me though the worst of it) but try to stay as strong & as positive as you can & focus your anger and energy into getting yourself well again. You probably don't need me to say that the stress of it all is so overwhelming, it's detrimental to your healing process, but do try to get lots of rest (difficult with a little one I know!) and do things that make you feel good & calm. I wish you all the very best in getting through it all...
Chronic Fissure diagnosed December 2011
Healed by Diltiazem around Feb 2013
Anal Fistula followed burst abscess in June 2012
2 internal troublesome piles remain & suspected, but undiagnosed, ongoing Levator Ani type symptoms & flare-ups
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Re: My story. Giving this to solicitor today

Postby Joey_f_2000 » 10 May 2014, 02:45

Thanks for the kind words. I've got 3 littleuns so yeah resting is impossible lol. From 7pm I try and relax. Yeah the early days were so frustrating. Was so hard knowing what was wrong but no one was listening. I still haven't heard from my consultant. They are so slow. I wouldn't like to have anything too serious. Thanks for the reassurance.
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