Next stop Mayo Clinic?

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Re: Next stop Mayo Clinic?

Postby Apes » 14 Jun 2014, 12:30

It's certainly understandable you feeling the way you do. You would have thought healing the fissure would have solved or the issues. Stress can be physically depleting as well as well as emotionally. It will probably take time but I think your plan of action is a good one and will be routing for your complete recovery.
Fissure 2/13/14 from Colonoscopy
Nitro no help
Nifedipine no help
Botox 5/5/2014 work in progress
HEALED 10/2014
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Re: Next stop Mayo Clinic?

Postby SSK » 14 Jun 2014, 22:55

Thank you Apes. :-)
Right now I'm just relieved to be sleeping in my own bed after spending a week at mayo. Small pleasures :-)
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Re: Next stop Mayo Clinic?

Postby Scientist2516 » 14 Jun 2014, 23:29

Hi SSK, it sounds like depressing news, but at least they are taking your problem seriously and have a plan you can work with. By the sound of it, depression and anxiety have been plaguing you for a long time. If you tackle those conditions and the pelvic floor dissynergia and tension myalgia at the same time, maybe you will start to make real progress. Reading this forum for several months, I've come to realise that a lot of people here say their fissures began at a time of stress. Many people are anxious and depressed - not surprising when you consider they are in constant pain. From my own experiences, I know that I hold a lot of tension in my bottom. The trauma of the fissure combined with tension - well, it makes sense. It sounds as though you are in excellent hands.

Good luck and take care of yourself. Treat the whole you, and work on getting well in mind and body. Remember that moods and sadness can pass away, and so can pain. Focus on healing. You can always always come here for help and support.
Nifedipine/lidocaine, no help
Diltiazem, effective, but caused major rash
Nitroglycerine, effective.
Topical estrogen for final healing.
Gentle heat to bottom - pain relief, muscle relaxant
Kondremul mineral oil
Time - lots of time.
Status - Healed!
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Re: Next stop Mayo Clinic?

Postby Rachael 1984 » 15 Jun 2014, 03:57

Hi SSK,
It's good you have a diagnosis, although I know and can relate to the stress and anxiety issues. I'm sure that this is my problem too. I still suffer pain and Fissure problems, and it's so frustrating to be told that I'm healed then il just re-tear and go through the whole cycle again.... I'm sure if I ever get this sorted I'll be scarred for life.

When do you start treatment? Good luck to you, and I hope you can be pain free soon...... Xxxxxx
Hem Banding sept 2012
2Fissures
Nitro- Effective short term
April 2013-Botox-Effective short term
Diltazem-No effect, developed Rash
July 2014-Diagnosed High Resting Pressure
LIS performed on 17.9.14
Ongoing pain/re-tears. Awaiting pressure test results.
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Re: Next stop Mayo Clinic?

Postby Ever the Optimist » 15 Jun 2014, 04:28

Hi SSK,
Having received your diagnosis, you are in such in a better position now to move forward and get through all this and I truly wish you all the very best :)
Did you ever consider Acupuncture as a complementary means of helping you through this? I have now been doing this myself for a couple of months with the most fantastic therapist and also, having suffered great anxiety and depressive issues, am finding the treatment really quite amazing (on all levels). When you consider how widely used this in the East, it's a thought? With a good & properly certified Acupuncturist, I would recommend anyone at least consider the option :)
Chronic Fissure diagnosed December 2011
Healed by Diltiazem around Feb 2013
Anal Fistula followed burst abscess in June 2012
2 internal troublesome piles remain & suspected, but undiagnosed, ongoing Levator Ani type symptoms & flare-ups
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Re: Next stop Mayo Clinic?

Postby SSK » 15 Jun 2014, 12:00

Thank you all for your support. You guys are truly wonderful people.

I don't know much about biofeedback, so I guess I will contact a few places here who do this and learn more about it and hopefully come up with a plan. Meanwhile I will also start psychological counseling to control the anxiety and panic attacks.
ETO, I haven't actually tried acupuncture but know some people who have had improvements for other kinds of pains. I will look into it, thanks for the recommendation :-).
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Re: Next stop Mayo Clinic?

Postby Alyssa » 26 Jun 2014, 15:26

SSk,

I am also a sufferer of pain despite being healed with Nifedipine..it is all so overwhelming and I too am trying to find answers to my "condition". I've been suffering for 4 months and it has taken a toll on my life (I have a 5 year old son; almost 5 month old baby girl); my heart goes out to you since you have been suffering for so long! I have been going to physical therapy for two months but have not had any improvement with the burning pain I get after going to the bathroom (pain lingers all day); I wake up with little to no pain then the cycle continues. I have not had any tests done to determine exactly what I have but have been told by my PT is that I have a pelvic floor dysfunction but its hard for me to accept that diagnoses since I bleed with some BM. Ill be looking in on your posts so keep us updated...
2/14 Fissure developed
3/14 Diagnosed w/ fissure given Nifedipine
4/14 Referred to Pelvic Floor Physical Therapy=Pelvic Floor Dysfunction
5/14 Fissure declared "healed"/chronic anal pain persists
9/5/14 Botox to pelvic floor
9/22 biofeedback
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Re: Next stop Mayo Clinic?

Postby SSK » 28 Jun 2014, 05:39

Thanks Alyssa. I hope you find a solution to this difficult problem. Since you said that you are bleeding with some BMs, it's important to find out where the blood is coming from since the fissure seems to have healed. Has the physical therapy helped you in any way?
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Re: Next stop Mayo Clinic?

Postby Alyssa » 28 Jun 2014, 10:30

I just had a colonoscopy done yesterday and they found a polyp so i hope that is the source of bleeding, but they removed it so we will see if that truly is the cause.. Physical therapy helps relax me but has not helped diminish the burning pain but I've only been doing it for two months. My pt said that if there is no improvements with my pain, she will refer me to the specialists in San Francisco (kaiser) which is where a friend if mine who has PN goes to therapy.
2/14 Fissure developed
3/14 Diagnosed w/ fissure given Nifedipine
4/14 Referred to Pelvic Floor Physical Therapy=Pelvic Floor Dysfunction
5/14 Fissure declared "healed"/chronic anal pain persists
9/5/14 Botox to pelvic floor
9/22 biofeedback
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Re: Next stop Mayo Clinic?

Postby Alyssa » 30 Jun 2014, 20:29

SSk,

if you don't mind me asking, what were the tests that were administered to determine your condition?
2/14 Fissure developed
3/14 Diagnosed w/ fissure given Nifedipine
4/14 Referred to Pelvic Floor Physical Therapy=Pelvic Floor Dysfunction
5/14 Fissure declared "healed"/chronic anal pain persists
9/5/14 Botox to pelvic floor
9/22 biofeedback
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