PEG: once a day or more?

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Re: PEG: once a day or more?

Postby SueMac » 24 Dec 2018, 14:33

Since I’m a girl we won’t have exactly the same symptoms! But I can relate - my pain ramps up after a BM although it’s not painful to “go”. My pain changes as well last week it was anal soreness and into buttock this week it’s higher up like there’s a ball up my bum!! It’s infuriating

I’m wondering if in my case it’s tight pelvic muscles . Someone else on this forum is seeing a PT therapist and I’m interested to find out what they do.

I meanwhile have to wait for my colorectal appointment in feb to see what they think first.

How long have you been suffering?
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Re: PEG: once a day or more?

Postby sean530 » 25 Dec 2018, 11:57

Sorry for late reply. I forgot how to turn to page2 of the forum. Mind has been so dam foggy. I can't even believe some of the things I have done this past few weeks. So sad.
I have been suffering since Oct.
Tldr:
Fissure, use gtn for 1week, get this dull ache for 10 days which I think is cuz of gtn use, stop gtn, hard bm outta nowhere, boom fissure retear.
Rinse and repeat.
Right now after a BM it's like my Rectum spasms.... Not painful. Just discomfort. Followed by tickling.
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Re: PEG: once a day or more?

Postby SueMac » 26 Dec 2018, 12:36

It's very tiring isn't it dealing with it all especially when you cannot give your bowels a rest you have to keep using them most days. I found the GTN made me more sore like I was allergic to it. I used it for 18 days and was no better. I've stopped it and been a little better last few days. I don't know whether to restart it or not at the moment.
The GTN is supposed to help with spasms I think - could you try it again but use less and less often since you know you have a fissure (where I don't have diagnosis as GP couldn't see one).
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Re: PEG: once a day or more?

Postby sean530 » 27 Dec 2018, 01:27

oh my god, that's exactly how it made me feel. yes it caused the sphincter to relax but also feel sore along with a dull aching and also at night after i applied GTN it caused what i can onlt describe as a lot of HEAT in the perianal area. it felt like i had to sleep with nothing covering my bum cuz of the heat down there.
I don't think you should use anymore GTN. Guess we are that very rare percentage of people that have this weird reaction to it. i dunno if gtn made my fissure any better but it sure caused new problems to occur.
and yesterday i had a somewhat hard bm and afterward, it felt like my entire bowel was spasming and 2 hours later bam there was that sharp right sided pain.
one more thing is that after a good nights rest everything feels better. this is the one thing that has been consistent.Gastro guy told me its probably a nerve issue
Also, you said you have to meet with a specialist in FEBRUARY? like youll have to keep suffering for two more months???
Lastly i feel like we have hijacked the thread so PM okay with you?
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