Hi all, been looking at posts on here for a month or so and figured I needed to post and see what other information I can gather. A little history on me, I'm 38/M and have been dealing with fissures for 8 years. I got my first one after a kidney stone and due to the pain meds I was extremely constipated and it led to the fissure. They've come and gone since then usually would bother me for a day or two every couple weeks. I'd have a hard stool, or large stool and it would act up. I'd put some nitroglycerin on it for a few days and it would subside. Then flare back up again.
The most recent flare up occurred in January of this year. Even with the nitro ointment it continued to bother me. Days turned into weeks so I went to the doctor to get it checked out. Confirmed it was "just" a fissure, scheduled a colonoscopy to make sure there was nothing else causing the blood. Also prescribed Diltiazem for 8 weeks.
Somewhere around the time I started to take the Diltiazem the pain began to get much more severe and linger longer through out the day. I have bowel movements in the morning and afterwards I needed to lay down to get the pain to subside or at least calm down some. Sitz baths seemed to stop working on relieving the pain so I cut them out. The colonoscopy didn't reveal anything so I was just dealing with the fissure. The doctor that performed the colonoscopy recommended LIS for the fissure that he could tell it had been there for a while and probably would not heal on it's own. I was not quite there yet. I had done a little research on the LIS surgery and was struggling to understand how the solution to a cut that doesn't heal is to make another cut in the same area.
So my wife (who is a pelvic floor physical therapist) and I tried to gather other information and other treatments to avoid the surgery. I scheduled a second opinion with CRS in Baltimore but had to make that appointment 2 months out (and still have 3 weeks to go before that appointment). I stopped using the Diltiazem because it seemed like my external sphincter was so relaxed from it that the rest of my muscles had to hold extra tight to make up for it. Thus causing the spasms and pain I was dealing with. She did internal and external releases on my pelvic floor muscles which seemed to help for a little while, although the internal ones were still pretty painful so we stopped those. I've been doing stretches, external releases, I started taking magnesium which has helped with softer stools, I've been taking stool softeners for YEARS to help avoid the hard stools and they never worked as well as the magnesium has. I eat like a bird to help have smaller stools and sometimes I'm in so much pain I just don't have an appetite.
So that's most of the history leading to this point. Yesterday I had diarrhea and needless to say that was absolutely miserable. Even before that kicked in it was a very painful morning. Over the last few weeks I had been having more "good" (or less painful) days than bad but still plenty of pain and bad days. I decided to go back to the original doctor that I had seen and have scheduled an appointment for this Friday (May 6th) to get more information on LIS and confirm if there has been any healing or changes in my situation. I think I will go ahead and schedule the LIS before the appointment just so I can get on the list and don't have to wait another week or two after Friday's appointment. I just can't live like this anymore. We have an 18 month old son that I can't really play with or help much with because it causes me pain to do almost anything. The only time I can be comfortable and/or pain free is when I'm laying down.
I just wanted to post on here to see if I could get some information from people who have had LIS or know more about it than I have. If there are other posts or threads that have this information I'll happily go to them. I have read through some of the recent success stories and journals and that's helped.
1 - I know this is an uncomfortable and painful recovery, but how does the pain relate after LIS to before? I'd consider my pain most days pretty severe, 5+ almost every morning. Driving, sitting, lifting, all are pretty painful. Sometimes walking too much can cause pain and spasms as well.
2 - How many people have had fissures recur after the LIS? Since any tear/wound will leave scar tissue that could lead to less mobility or a weak spot down the road I'm wondering if LIS is usually success long term or if fissures will still be a problem.
3 - I know everyone heals differently but an estimated time frame of when the pain was mostly gone and when you were able to get back to life as normal. Seems from what I've read those are two different timelines.
4 - If I have the surgery done in the next week or two it will be done by a general surgeon who has done a lot of these (I don't know the details, it's one of our questions for Friday). Has anyone else had LIS done by a general surgeon or is CRS pretty much a necessity (I'd have to wait until my 2nd opinion appt in 3 weeks and then however long it takes to get in for surgery to have CRS perform it).
5 - Anything else I should know, ask, or do before deciding? Or things to know about after surgery?
I appreciate any advice, opinions, and personal experiences. Finding this forum has been great and helped me to know that I'm not the only person dealing with this. It's not exactly something you want to talk about with many people.