by msimon » 25 Jul 2015, 12:16
I understand your frustration Jimmy. I have had levator ani syndrome for over 10 years and have had some success with treatments but mine was so bad by the time I got help I had to go to the big guns...botox. Now I'm in other treatment and will see how it goes.
I think I recommended the 'Headache in the Pelvis' book to you because your issues and treatment sound so similar to one of the book's author's. It really is a good read. If nothing, it helps you understand your condition better and gets you started on a treatment plant to help yourself (ie., how to do trigger point release in your muscles). I would suggest, if you are brave enough, to try inserting a finger and palpate the muscles. If you feel hard bumps or bands of tissue this is your pelvic floor being too tight. You could try massaging things to see if it helps...
Dec '13 Fissure from anoscope
3 X internal sphincter botox
'08-'15 Botox for pelvic floor dysfunction
Nov '14 LIS/sentinel tag removal
Feb '15 Deroofing of recurrent infection from LIS
summer '15-healed but still ongoing muscle dysfunction/pain