by Diamond » 30 Jul 2013, 10:01
Hey everyone! I haven't been on this site in months - but figured I should come back on here as I'm gearing up for surgery #3. To give you a little bit of a background - been dealing with this for almost 4 years now. It all started off as a recurring abscess, this turned into a fistula. Then given an incompetent surgeon and ridiculous wait times - I delayed surgery for over a year. This lead to a second abscess. Turns out that I have two fistula tracts with one internal opening.
I had my first surgery last October. They placed one seton, and did two fistulotomies. I healed pretty well - but the bad part is that the tract without the seton in it healed over too quickly and there was still some infection stuck inside. So then - surgery #2 in April. They placed a second seton. I still have daily drainage - and sometimes quite a bit of bleeding after a BM. My surgeon wants to open up the rest of the fistula tract and remove one of the setons - just waiting for a surgery date now. The other seton will stay in (it goes thorough muscle). The final step will be the LIFT surgery but they won't do that until everything else settles down.
I find that you get used to the seton over time - I wear soft gauze to catch any drainage. I also wear a panty liner if I'm not home just in case! I've heard that sometimes the tract can drain and dry out on it down and the seton may just fall out. I personally have yet to see that happen. Sitz baths with sea salt offer the best relief. Lately I've been pretty depressed about this ...especially when I realized that it's been FOUR years... I feel like I've wasted away so much of my life. I can't just travel, have kids, do whatever.. I used to love going out - now I find that I'm on the couch watching tv and trying not to eat crap (gotta love emotional eating!).