Hi,
Just like everyone else, I REALLY feel your pain and despair coming through in your posts and can relate to your misery with it all...I do so hope things start to pick up for you soon and you gain the strength to be able to deal with it all better emotionally. I went to the point of being truly depressed, self-obsessed and hit pretty much rock bottom, thinking that life really wasn't worth living... but with a lot of support, (and medication) am beginning to realise that this IS a temporary situation and that life WON'T always be like this. I have read and heard of successful AF healing stories, both with and without surgical intervention, and think that I've just got to do what I have to do to get through it all in the meantime.
I noticed you started the Dilitazem. How's it going? I used this for seven weeks and it got me to the point of feeling almost normal again. Since I've been off the cream, I feel healing but not 100%....BM's now are pretty much pain free and no bleeding. The pain has continued to stay dull and ache-like with occasional pressure but not the intensity as back in those first few weeks and although it's there still, it's tolerable.
The key I agree, is distraction and focus on other things (which I can find hard to do!) but literally, STOP yourself when you start the focus on the pain or negative thoughts ( I pinch myself! or just say STOP out loud!) and focus on something or force myself to change my direction physically...Routine is particularly important to me too. I feel fortunate I am working because this really helps me focus through the working day...(not saying that it's always physically comfortable and I'm pretty much shifting position in my seat most of the time!) but I'm occupying my mind with other stuff. I then collect my daughter from school and busy myself with dinner/ household chores. Yes, the pain is there sometimes but not always (and I just treasure those moments!) but I just acknowledge it and move on. My hardest time in the day is early evening because I think I'm tired generally and seem to feel everything in my bum at this time!! but I reassure myself in knowing I will have a nice hot salt bath and that it's evening and time to relax and sit/ lie down as much as I want and then I can curl up in bed with a good book/ call up friends and chat!
The time I'm by myself can be the most challenging but I just try to throw myself into something else - going for a walk really helps, calling a friend, coming on this site for reassurance!!! reading, anything, watching rubbish TV, anything to distract really and I try to plan ahead a bit too (meals etc..) Overthinking and lack of motivation are worse enemies for me than my anal issues!!
I'm not saying that every day is good because I still have pure hellish moments of frustration, impatience and WHY ME?!!! but the tears have been less and like Badd above, I have always also been pretty positive and I know I'm still that same person, just suffering a bit medically at the moment but strong enough to get through it.
I hope when you read this, you are going through better days and you WILL get through this as I believe we ALL will at some point.
xx
Thanks to everyone contributing to this post. As ever, the support on this site is amazing and you all helped me too whilst reading through this.