Urgent question about hospital procedure/botox and periods!

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Re: Urgent question about hospital procedure/botox and perio

Postby Ever the Optimist » 27 May 2014, 15:54

Please update after you've been! & Good luck with it all :)
Chronic Fissure diagnosed December 2011
Healed by Diltiazem around Feb 2013
Anal Fistula followed burst abscess in June 2012
2 internal troublesome piles remain & suspected, but undiagnosed, ongoing Levator Ani type symptoms & flare-ups
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Re: Urgent question about hospital procedure/botox and perio

Postby Alyssa » 29 May 2014, 23:14

I went to my crs appointment yesterday and again she mentioned that there is no active fissure going on... Then I asked then why am I still in pain and she mentioned that unfortunately it does take time to settle things down there and she suggested that I see a pelvic floor therapist (which I am already seeing); she also told me to keep up the high fiber diet and drink citrucel. Someday I am at my wits end with this pain because it is just a never ending cycle! I look forward to visiting this site because i feel as though this community has been much more helpful that doctors!
2/14 Fissure developed
3/14 Diagnosed w/ fissure given Nifedipine
4/14 Referred to Pelvic Floor Physical Therapy=Pelvic Floor Dysfunction
5/14 Fissure declared "healed"/chronic anal pain persists
9/5/14 Botox to pelvic floor
9/22 biofeedback
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Re: Urgent question about hospital procedure/botox and perio

Postby Alyssa » 29 May 2014, 23:27

I was declared "healed", I still continued to get discomfort/ soreness/ twinges for a few months after. I think if you're healing naturally then it seems to happen this way.

Ever the optimist,

Can you recall how long it took for you to feel normal again? I had my fissure for almost two months and its been two months since it has been healed with nifedipine and I'm still in pain (today I'm in pain (soreness, pressure, burning, irritation, while yesterday I was ok). Since the crs did not see anything that could be causing the problem, she has suggested I see a pelvic floor therapist (which I am already seeing).
2/14 Fissure developed
3/14 Diagnosed w/ fissure given Nifedipine
4/14 Referred to Pelvic Floor Physical Therapy=Pelvic Floor Dysfunction
5/14 Fissure declared "healed"/chronic anal pain persists
9/5/14 Botox to pelvic floor
9/22 biofeedback
Alyssa
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Re: Urgent question about hospital procedure/botox and perio

Postby Jbl22424 » 30 May 2014, 22:27

Alyssa, do larger bms set it off like a fissure? Do you take miralax? Do they say the muscle is still spasming? Just curious...
Developed fissure from constipation due to breastfeeding 7 weeks after delivery (Jan 2014)
Nifedepine
Colace
Magnesium
Miralax - godsend
Nitro - some improvement
LIS (May 2014) - cured for 3 months then setback
Diltiazem
Feeling better for now
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Re: Urgent question about hospital procedure/botox and perio

Postby Alyssa » 30 May 2014, 22:54

No I don't have large bm; i have very soft ones and I don't need to take miralax since my poops are already too soft. She didn't say if my muscle is spasming but I don't think I am either (mild spasms, maybe). I feel very soar, burning sensation and when I sit I am in more pain. The pain seems to be there everyday but some days it's much worst (yesterday and today I'm in 4-5 pain scale) than others.
2/14 Fissure developed
3/14 Diagnosed w/ fissure given Nifedipine
4/14 Referred to Pelvic Floor Physical Therapy=Pelvic Floor Dysfunction
5/14 Fissure declared "healed"/chronic anal pain persists
9/5/14 Botox to pelvic floor
9/22 biofeedback
Alyssa
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Re: Urgent question about hospital procedure/botox and perio

Postby Alyssa » 30 May 2014, 23:00

By the way my anal sphincter is normal...not tight.
2/14 Fissure developed
3/14 Diagnosed w/ fissure given Nifedipine
4/14 Referred to Pelvic Floor Physical Therapy=Pelvic Floor Dysfunction
5/14 Fissure declared "healed"/chronic anal pain persists
9/5/14 Botox to pelvic floor
9/22 biofeedback
Alyssa
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Re: Urgent question about hospital procedure/botox and perio

Postby Ever the Optimist » 31 May 2014, 14:10

Hi Alyssa,
Everything you describe continued for months and to this day, but there has been an overall reduction over the last 2.5 years in all the symptoms to the extent it's manageable and "normal". Sometimes, I go for days with very mild reminders of irritation but I also continue to go through flare-ups, when I have a few more noticeable days (not in terms of pain - just those twinges, itching, dull aches, rectal pressure) This I find is exacerbated by any form of straining/ diarrhoea. Soft but formed stools work best for me that pass easily but do not come "gushing" out too quickly or need to be forced in any way. Stress makes everything so, so much worse - My digestive system gets stressed, which generally leads to runny stools. Being in a calmer and sunnier place, makes a huge difference. The issue is compounded by two internal hems (the one I believe is a Sentinel pile), which can also become easily aggravated and don't help. The "Sentinel" one on my left-hand side (where the fissure was) is always the worst and although my busy lifestyle generally keeps me well distracted from the issue these days, I will sit down at some point in the evening (and most evenings) and become aware that I went through this hell 2.5 years ago through extra sensitivity in that area. This is what frustrates me so much! because I don't know if I truly will ever feel 100%. My sphincter is also not particularly tight...& sitting for me is also uncomfortable when I get flare-ups (particularly evenings when I'm trying to relax!)
Do you find that your pelvic floor therapy is making any difference?
Bear in mind though, that my fissure took over a year to heal unlike yours & that my internal piles don't help, so it could be that although full recovery for you may take a few months, it may well be a lot quicker than mine! :)
Chronic Fissure diagnosed December 2011
Healed by Diltiazem around Feb 2013
Anal Fistula followed burst abscess in June 2012
2 internal troublesome piles remain & suspected, but undiagnosed, ongoing Levator Ani type symptoms & flare-ups
Ever the Optimist
Moderator
 
Posts: 1625
Topics: 24
Joined: 12 Apr 2012, 16:00
Location: UK
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Re: Urgent question about hospital procedure/botox and perio

Postby Alyssa » 31 May 2014, 16:04

I don't feel that the physical therapy is helping a whole lot but I've had two sessions and I don't know how long it takes to feel improvements. The reason I feel this way is because I religiously do my exercises but continue to be in pain.
2/14 Fissure developed
3/14 Diagnosed w/ fissure given Nifedipine
4/14 Referred to Pelvic Floor Physical Therapy=Pelvic Floor Dysfunction
5/14 Fissure declared "healed"/chronic anal pain persists
9/5/14 Botox to pelvic floor
9/22 biofeedback
Alyssa
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Posts: 735
Topics: 26
Joined: 29 Apr 2014, 11:24
Location: San Jose, CA
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Gender: Female

Re: Urgent question about hospital procedure/botox and perio

Postby Jbl22424 » 31 May 2014, 23:28

What do they do in PT?
Developed fissure from constipation due to breastfeeding 7 weeks after delivery (Jan 2014)
Nifedepine
Colace
Magnesium
Miralax - godsend
Nitro - some improvement
LIS (May 2014) - cured for 3 months then setback
Diltiazem
Feeling better for now
User avatar
Jbl22424
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Posts: 295
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