I want a bag

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Re: I want a bag

Postby Okaybum » 12 Oct 2019, 16:13

I hope the swimming helps. I understand your frustrations and hoping you win your disability
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Re: I want a bag

Postby hurtinend » 12 Oct 2019, 17:45

what can help manage the Intense burning spasm and tightness?

Mine starts at the exit and radiates all the way up and across to the lower abdomen and bladder

I’m literally going insane. Im weaning off morphine it doesn’t touch the pain
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Re: I want a bag

Postby patience_and_healing » 13 Oct 2019, 09:48

You mentioned that you're no longer going to physical therapy sessions. Did you recently try that and was it helpful in any way at all?
8/16-12/16: Fissure due to antibiotics
5/17: Botox to sphincter
Currently in pelvic physical therapy
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Re: I want a bag

Postby hurtinend » 13 Oct 2019, 14:19

Too early to tell
Told it can take several treatments before relief

I should have become a physiotherapist
$120.00 Canadian dollars for 40 minutes
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Re: I want a bag

Postby patience_and_healing » 13 Oct 2019, 14:21

Well why not go to several sessions then? I don't see how you're going to get any relief by lying in bed all day suffering.
8/16-12/16: Fissure due to antibiotics
5/17: Botox to sphincter
Currently in pelvic physical therapy
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Re: I want a bag

Postby SueMac » 14 Oct 2019, 13:02

You can't do any harm by trying the swimming and walking. Its a positive step Hurtinend. No point paying for the physio if it's not working or at least not with that physio - it probably just fuels the resentment of being in pain and paying for treatment that doesn't show discernible improvement, if anything making you worse.
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Re: I want a bag

Postby hurtinend » 16 Oct 2019, 15:24

yes well I went to the pool yesterday and did some exercises

The rectal spasm is effecting my bladder again, it’s been in spasm on and off and getting worse

I fear the future my arsenal of prescription drugs don’t help.
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Re: I want a bag

Postby hurtinend » 16 Oct 2019, 15:26

patience_and_healing wrote:Well why not go to several sessions then? I don't see how you're going to get any relief by lying in bed all day suffering.


I’ve walked an average of 5 miles per day so far this month. I am moving a lot.

I’m very serious now about pursuing a doctor that would give me a temporary colon bag.
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