10 months fissure… Should I consider LIS?

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10 months fissure… Should I consider LIS?

Postby empty_butt » 03 Jan 2018, 03:35

Hello everybody,

I’ve been plagued with an internal AF since April 2017. Unfortunately the fissure was caused by Campylobacteriosis and I discovered it by myself after 6 months of absurd abdominal pain and diarrhea on the top of the fissure hellish pain (my GE thought I was mental and misdiagnosed me with IBS, after which I autonomously decided to get my stools tested and found out I had been colonized by Campylobacter).

I can honestly say I tried it all: careful diet, water, laxatives, antibiotics (for Campylobacter), GNT, zinc, biofeedback, every kind of cream on earth that promised relief. The only thing working still today is GNT, I overcame the headaches and find it very useful even after 10 months.

The point is, I want to have my life back. I cannot wake up scared of going to the bathroom. I cannot live with the terror of re-tearing the fissure (happened four times) if I do not take a laxative before going to bed. I mean, we’ve all been there.

I openly talked to my CRS about getting LIS, as every conservative treatment is obviously only temporarily reducing the problem, not eliminating it. She advise me to continue with Biofeedback as she feels if I do not solve the muscular contractions first, LIS would be inefficient, and I’m doing what she says.

I am terrified of doing LIS, but at the same time I feel I’m running out of options. Anybody out there on the same boat (chronic fissure duly re-tearing after months) that is considering LIS? What are your thoughts?

Thank you all.
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Re: 10 months fissure… Should I consider LIS?

Postby Mypoorbutt » 04 Jan 2018, 10:51

Hi, sorry to hear your suffering
If you have tried the creams and your still not healing then I would advise LIS, I’m not sure why she is saying that it wouldn’t work without the biofeedback as my resting tone was over 130 and my LIS worked without any biofeedback at all and my fissure was deep to the muscle and nearly two inches in length.
Maybe it’s because you heal that she thinks the biofeedback would work or maybe she thinks LIS is not an option for a different reason but it was and still is the treatment that has the highest success rates for fissures.
Good luck
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Re: 10 months fissure… Should I consider LIS?

Postby empty_butt » 05 Jan 2018, 02:00

Hi Mypoorbutt,

Thank you so much for this!

I think she is somewhat skeptical of me having LIS because I was diagnosed with an early stage of fibromyalgia right before falling in this tunnel…
I’m currently not taking any meds as I can handle it, but I think fibromyalgia and muscle stiffness are part of the problem or at least aggravating it as in the spasms and muscle contractions surely do not promote healing (especially in deep down muscles of the perineum that you cannot massage in the “usual” ways.

I’ll talk to her and ask for a manometry since I haven’t done one ever. I’m giving myself a year (April 2017-April 2018), after that I will ask for surgery as this stupid fissure has already ruined so much of my life and I’m missing out a lot of things for it.

Have a nice day!
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Re: 10 months fissure… Should I consider LIS?

Postby Walking Wednesday » 24 Oct 2018, 18:13

I hope you are well and recovered nicely. I saw you post about proctitis because I too have a dr that thinks I’m crazy and he is at a loss. What were your symptoms of proctitis if you don’t mind me asking? And has it gone away? Thanks be well ww
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Re: 10 months fissure… Should I consider LIS?

Postby TubDweller » 28 Oct 2018, 11:46

I had my first AF when I was only 20 years old (in my 40s now). I had them on and off for years, when earlier this year (January) I ended up with two back-to-back thrombosed external hemorrhoids, and an anal fissure.

The pain broke me. Quite literally, I was sobbing and drooling on the floor in my bathroom, barely able to make it into the tub. After years of doing nothing, I visited two CRS (first one didn't work out), and after three months of Nifedipine cream I scheduled an LIS procedure.

My CRS called my ordeal winning a gold medal in the pain olympics, and I still feel the effects of it (mentally) today. I would consider — if it's possible for you — seeking a second opinion. My CRS is very compassionate, and has been very encouraging, while remaining realistic. I was so concerned about incontinence, but he talked me through it and made me think about aspects that I hadn't.

In the end, I had LIS + an external hemorrhoidectomy. Recovery was absolutely brutal, but worth it. I was able to stop using the creams, and at around 4 months, I've been doing better. Unfortunately, I seem to have re-aggravated my fissure this week (that's why I'm back here ;) ), but I have no bleeding, and the pain is so much less than it was before I had LIS.

So in short, even though I haven't healed completely after LIS, the benefits have outweighed the risks. I have no incontinence, but it is easier to move my bowels and pass gas. Everyone's risk factors are different, but I do not regret having the surgery. I would do it again.
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