Burning when sitting

Acute fissure Denver but spasms since july

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Re: Burning when sitting

Postby Burnziety » 04 Mar 2021, 09:29

Thank you magnesium lover I was thinking about taking mag as an alternative to miralax and have taken the solgar brand of vitamins I think they are high quality I am a diabetic on insulin- have been for 25 years late onset type 1.5 since my first pregnancy at age 29 and I do have nummular eczema so I am going to ask my gp about supplements I write these things and then read them and it makes me seem unhealthy lol I also had a hysterectomy three and a half years ago and very early 2mm size endometrial cancer was found Knock wood I am followed by an oncologist every 6 months soon to be annually only I swear Before that surgery I had exercised six days per week I have never been overweight never smoked I thought I was doing everything right health wise. My physical and mental state were altered definitely by that experience I am grateful it wasn’t worse but I never felt I was given appropriate medical advice Long story but I advise anyone to be their own health advocate drs are just people like us some better at medicine the trouble for me is trusting them after having had bad advice or no advice I could write a book! Both of my sister have stage 4 cancer diagnose over the last two years due to smoking and my dad died of lung cancer 22 years ago as well my mom passed suddenly from heart attack likely caused by smoking /diabetes It is hard to even read my words actually I never had any serious illness hardly ever a cold two years ago I developed the burning when sitting coincidentally at the time my sisters were diagnosed. I wasn’t eating drinking water sleeping right stopped exercising became anxious and sad I was finally fed up enough to ask my dr and she had the usual it’s just Hemmorhoids and so the horrible burning got worse until I saw a crs on my own and then Covid hit well the rest as they say is history. My fissure did heal after 5 plus months on nifedipine but when I continued burning the crs said he was stumped!! well that started my quest to get help I read mamma fizz on here consulted dr rosenfeld so I did that too he suggested pt and levator spasm as the cause I saw a rude crs np locally who did give me a Dre and referred me to pt because she said I had levator syndrome She then said she would not see me again until I had a colonoscopy well fine I got help for several weeks last summer with the specialist pt I was able to drive sit longer etc I consulted by phone with the Cleveland clinic dr at this time and he also said levator ani and told my local dr to give me low dose Valium she agreed. I got up the courage to do the colonoscopy when procedures were allowed again on my 55th birthday dec 2nd I went in and the local dr a more recent Cleveland clinic fellow with dr Wexner in Florida supposed to be great failed. The versed didn’t work I was wide awake he couldn’t get the scope around the sigmoid colon turn it was painful to say the least. He sends me immediately to another facility so the prep isn’t wasted. They pump you up with co2 for that it was very uncomfortable so I think I’m done well two days later dr Calls says I have two 6 and 8 mm polyps and I have to be put out and have another colonoscopy and removal. So that’s how I ended up in the Cleveland Clinic guy is a colonoscopy wizard but he did botox too and I don’t think he gave me appropriate care or advice for afterwards or even a formal test for anal pressure actually he did not even do a formal Dre I know because I have had several by now. He just poked his finger at my anal opening on the outside and said yep it’s very tight ??? I feel so dumb and like I keep making mistakes I just want the sitting burning to stop. I am start to think it was just Hemmorhoids or a vein irritation or nerve pain all along I do have two grade two internal and a couple swollen external on the upper outer left side. Only the first crs spoke of them but said just take fiber you know the standard do nothing they’ll go away approach and when I started having the heavy weight felling three days after the Botox colonoscopy and Hemmorhoid snd sitting burning I called the Cleveland Clinic guy and he says maybe I have a sigmoidecele!?? Is he guessing I am still hoping just to be able to sit again without burning I just thought I could get a diagnosis snd treatment for that. But I can’t My new gp listened to all of this he is very young but he said in his opinion I should wait until the Botox wears off and that there have been too many coins in the kitchen! Honestly a wise answer he surprised me I wasn’t expecting much from the kid but he vowed to help but it’s not his specialty I thought I could get some help here from people who have gad levator and intra anal injections for the syndrome I think there aren’t many people who have so I am stuck and worried about a sigmoidecele but I did not have this weighty feeling before the Botox thanks to all who read this I have never seen a kinder group of folks this site is a blessing for me
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Re: Burning when sitting

Postby Burnziety » 04 Mar 2021, 09:34

Cooks in the kitchen lol
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Re: Burning when sitting

Postby patience_and_healing » 05 Mar 2021, 15:39

@Burnziety: The heavy feeling is most likely the result of muscles being paralyzed by the botox and unable to contract fully. If you are having trouble with beginning bowel movements, try using a small plastic syringe to put just a little bit of water (2-3 ml) up there, and stimulate a BM. Be careful to keep it very clean.

For the tailbone pain I suggest you go back and see your pelvic floor PT. She will definitely be able to help with that. Tailbone pain is often related to pelvic floor muscles, because that's where several of them are attached. In the meantime, get one of those tailbone pain relief cushions so you can sit comfortably. Ask your doctor for pain relief medication, no need to suffer.
Take care, and I hope things will improve for you very soon.
8/16-12/16: Fissure due to antibiotics
5/17: Botox to sphincter, fissure healed
9/19: Trigger point injections and pudendal nerve block
11/19: Botox to pelvic floor
8/20: Botox to pelvic floor in new location.
Currently in pelvic physical therapy
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Re: Burning when sitting

Postby Burnziety » 05 Mar 2021, 15:59

Thank you so much patience I appreciate the reply more than I can say I was suspicious of Botox as the cause but the Cleveland clinic dr was so dismissive I think he truly did not realize who he was talking to as it was a phone consult after he failed to connect via zoom. He later sent me a note backing away from his sigmoidecele suspicion saying he reviewed my ct colonoscopy and my records ! My husband and I though he should have reviewed those prior to speaking with us I am going to follow your advice about the pt she is really good and rare to find I am told. she is actually located at my gynecologist/oncologist practice! what luck I hope the Botox just wears off I would be glad just to have the burning when sitting after all of this never though I’d say that. I am grateful I had colonoscopy and no polyps so that was a plus the skin near the external hemorrhoid may get better as it is resolving albeit slowly I wish you well I follow this site a lot and feel like I know you and always wonder how you are doing funny I know but true thank you
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Re: Burning when sitting

Postby Burnziety » 26 May 2021, 12:23

Help I
Went back to Cleveland Clinic they did a Manometry they said I had slightly high resting pressure not enough increase in pressure when asked to squeeze and inability to expell the balloon they said I should go back to pt and do biofeedback seriously not at all helpful I asked about the pressure and inability to complete bowel movements after to Botox and they offered no explanation or even an answer to could the Botox be causing this even after three to four months? I saw another crs a women at the University of Rochester and she said I need both of those and poop test if I am same at six months past Botox she said sigmoidecele is fixed
With lap day surgery easy for her to say ?? Please any advice? I am going to a physiatrist for my tailbone and pt in a week
And I am also trying Metamucil again it seems to help with propulsion but I still cannot go in the afternoon even tough I know there is more up there!! I
am so sad and depressed does anyone know if Botox can last this long?? I am so confused my fissure healed a year ago and now I still have anal burning sitting tailbone pain and pelvic dysfunction and incomplete bms !!! I never had any of this before the fissure? Anyone have any idea what to do !? Or even a kind word. Thank you all
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Re: Burning when sitting

Postby KAFissureForever » 29 Aug 2021, 23:27

Burnziety wrote:And I did see my dermatologist who confirmed the Hemmorhoid and the heavy side effect of Botox is well known and results from too much or to first timers in her practice clinic dr said he never heard of that side effect? What!!!!


What ended up happening, BZ?

Following your journey and curious what happened
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Re: Burning when sitting

Postby Burnziety » 01 Sep 2021, 09:24

I am still having burning sitting and tailbone pain thank you for asking I have followed up with a urogynecologist and have been seeing my pelvic floor pt again I am doing yoga type exercises but I am going to see a new local crs who is specializing in pelvic floor issues in October as she is now on maternity leave The uro is going to be partnering with her so she will evaluate me for levator syndrome something which no doctor has appropriately done according to my uro The pt is wonderful but is busy so I haven’t had as many sessions as recommended but she has given me a home routine I do not have the heavy feeling or constipation as the Botox has finally worn off it WAS the reason for that I would never consider having it again I feel it made my tailbone worse I want to say also that I think the colonoscopy caused my tailbone pain and I did see a physician who gave me an mri and X-rays of the area he was rude - long story but nothing abnormal was noted in the pictures the pt believes it is related to levator and muscle imbalance but I am seeing a physiatrist in October that she recommended she said he has given injections to some of her patients and that they are very pleased with him so I am hoping to be able to just sit and drive without burning and tailbone pain my regular doctor has been very kind and has been guiding me he gave me lexapro and a script for valium for muscle relaxer to be taken once or twice a day as needed only 5mg I haven’t had to take it much so that’s good the uro also said I should not have any invasive tests like the defecography or manometry unless the new crs thinks it’s absolutely necessary I am still trying to recover from the recent loss of my older sister and I do have my annual check with my onc/gyn as I did have a hysterectomy and unexpected albeit very small 2mm endometrial cancer found and so she said the stress I am experiencing may be contributing and to try to be easier on myself actually she was very kind I think I am finally finding doctors who are caring and trying to help in fact she said I need a team of doctors to help me because these issues overlap can be misunderstood by doctors and are difficult to treat sometimes she said tailbone issues are notoriously long to heal I will update my story I hope to be able to sit and drive - goals. Ha as the kids say best to you and thank you!!
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