by queenofpain » 08 Oct 2007, 07:22
Hi Guys,
Okay, I really need help. My questions are bolded far below. Just to recap, I have had my fissure for 13 months now, and had seen a CRS last Fall (2006). He had recommended the usual conservative route first of a supplementary fiber (Metamucil) plus sitz baths. I tried this regimen, but eventually (within a week or so), the fiber seemed to be too much for me. It gave the stools too much breadth, and I would re-tear myself. It also caused too much straining, and too many bms. Drinking 80 oz. of water did not help. When I explained to the CRS last December that I had to drop the fiber aspect of the regimen (I had even tried less than a teaspoon per day), he said he really did not need to see me anymore, and that it looked like I had my own regimen. I was shocked, since I was, and continue to be, FAR from being healed. At any rate, things improved somewhat beginning in February 2007, but began to deteriorate in late August/early September 2007 for some unknown reason.
Thus (I'm trying to make this short), I made another appointment with the CRS last Thursday to see what he would recommend in terms of treatment at this point. From the moment I walked into the office, I could tell he did not want to see me because I had given up his regimen of Metamucil plus sitz baths 10 months ago (I guess I didn't get the message back then). If I am not mistaken, he said that 95% of his patients heal with his regimen, and in so many words, I was not complying by taking the full dose (even he agreed last December that I should drop the dosage). I nicely explained to him that the fiber was too much (I was having 8 bms a day, and even he thought that was too much at the time). He said Thursday, i]"You've had this so long,"[/i] implying that I was the one prolonging it. I was totally shocked by his demeanor, but I persisted anyway, and asked if he would answer some questions. He replied that he did not see the point. He told me to Google the American Board of Colorectal surgeons, get a second opinion, and see if what he is saying is true. (Val, if you are reading this, I did manage to ask about how they would perform a sigmoidoscopy on a fissure patient, if warranted. He said they wouldn't do the procedure until the fissure was healed - or they would do a colonoscopy if they thought there was a greater problem, and they would use anesthesia. He really did not want to deal with me, so I could not ask anymore about it.)
At any rate, sorry for the long post, but I'd appreciate any replies to the following:
1) Anyone have a bad experience with a CRS where you felt greatly misunderstood? Anyone told to find another CRS, in so many words? I really left in shock and awe. It's not like I didn't try his regimen. I had expected that this time he would try to figure out why the fiber was causing so much trouble, and proceed with another recommendation, i.e., cream like diltiazem. It sounds like he goes straight to surgery from fiber/sitz treatment because only about 50% heal from the creams.
2) Anyone have a bad experience with supplementary fiber?I tried both Metamucil and Benefiber, with the same results. Of course, I want to follow his regimen, but I was so afraid of all the straining, soreness, and tearing, that I had to quit after a few weeks. I was terrified of causing more problems. What was I doing wrong? I was drowning myself in water.
3) Anyone know of an experienced, sensitive CRS on the North Side of Chicago (or downtown)? I don't have a car, so he/she has to be in the city. I really need someone who has performed hundreds of LASs (the surgeon I saw has done hundreds - I asked, and he is reputed to be very good), and who will listen, and try to understand what I am saying.
HELP!!! I have to get out of this pain. Last week, I was doing better until I stooped to wipe up something I spilled. I have been in pain since, but the CRS looked askance when I told him that certain postures seem to re-injure the fissure. He implied that it is not possible - it is all related to the bowel movement. But I didn't have a bm that day (which was not unusual). I have had the identical experience on other bm-less days. I just couldn't explain that to him.
Thanks for all your support. A lot of people just don't understand the pain unless they've been there.
QueenofPain (AgonyAnn)
O give thanks unto the Lord; for He is good: because His mercy endureth forever. Psalm 118:1[/u]