Fissure, Fistula & Coeliac Sufferer

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Re: Fissure, Fistula & Coeliac Sufferer

Postby Kristy38 » 19 May 2013, 02:05

Hi guys,
Well, here I am, lying in my hospital bed, 2 days post Lateral Sphincterotomy and fistula lay-open surgery.
According to my doctor, everything looked pretty good down there, my fistula looked like it was healing well, and very clear of infection. My fissure had definitely torn more, which was the cause of all my pain, so the sphincterotomy should hopefully rectify the pain situation. He said he only took out as little muscles as he could afford to, saying that if we need to take more, we can go back in and take more. He is trying to save me from fecal incontinence.
I had my first post-op bowel movement last night. It didn't hurt too much coming out, although I was quite constipated, so the movements were quite hard, and very large to pass. Have had a high pain score since last night, but I didn't suffer the same excruciating muscle spasms from the fissure as I used to... which could be a good sign?
It's early days yet, so I think it will take a few weeks for things to settle down in order to see what the result is like and whether the pain will settle down.
Otherwise, being in private hospital, the nurses are lovely, the food is great (gluten free snacks too!), and the daytime television is awful, as usual :)
I hope everybody is feeling well today. Thinking of you all!
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Re: Fissure, Fistula & Coeliac Sufferer

Postby Miss K » 20 May 2013, 07:06

Hiya Kristy! :)
Very happy to hear your surgery went relatively smoothly and your doctors are confident with the results, it sounds a bit promising too if the spasms have decreased after just two days :) Hopefully this means the beginnings of a pain free life, you and the kiddies deserve it after all you've been through the last few months! Image
Thinking bout ya and hope you'll be back home and comfortable really soon. The surgeon up here prescribed 5% lignocaine which is a local anaesthetic for the week or so when my fissure pain was really unbearable if that is helpful to suggest. But sounds like you've got a great team looking after you and working on getting you better :) Be kind to yourself and keep faith it will heal with patience and time.
I was almost certain a couple of weeks ago I'd be living with this forever, but the last week has been very positive, only a small amount of pain and burning so starting to consider the possibility I may slowly be improving :) I'll keep crossing everything for a quick and complete recovery for you also now the surgery is over and done with.
Love and best wishes, Kath
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Re: Fissure, Fistula & Coeliac Sufferer

Postby bgd » 27 Jun 2013, 13:39

Hi Kristy,
I hope no news means good news :) You were one of the complicated cases here on the board, so I was wondering how LIS has worked for you?
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Fissure, Fistula and Coeliac Sufferer

Postby Kristy38 » 28 Oct 2013, 10:45

Hi all,

It's been quite a while, I know... Well, I had my LIS in May, and 5 months have passed. Things are certainly a lot better than they were since the procedure, but unfortunately I'm still having pain and issues, so I'm off for my 11th procedure under a general anaesthetic this Friday.

Although the pain is no longer so unbearable that I can't walk, etc, each time I open my bowels still, 11 months later, my fissure is tearing, and I bleed every time. My iron levels are very low, and I am having to have an iron infusion on Friday as well. I have minimal energy, and am still not able to work full time, as I have to be home to open my bowels, so that I can shower or have a salt bath to keep the area clean, as I still have a drain in place from the Fistula surgery.

To say I am over it would be an understatement... I'm 38, but feel like i'm 68! After almost a year of this, I just want my life back. But I am certainly thankful that the pain is not as intense as it once was.

So Friday I am having my 4th lot of botox, and having my drain tightened, while they have a look around to see what is going on. My GI specialist is being very conservative, as he is afraid of me becoming incontinent when I get older, which will be no fun at all. But then, being in pain every day is no fun either!

I hope everyone here is doing well, and are having some success. I'm off to read the posts to see what has been going on in my absence!

Sorry to be such a stranger... :)
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