by sue30uk » 01 Jun 2014, 14:25
I have just typed a message and its disappeared, how annoying. So I will type again! OMB, I'm back. It's been 3 and a half years and unfortunately not good news. I had my operation last September and they successfully removed the fistula which has healed. Unfortunately the fissure higher up hasn't. I went and saw someone in January and they gave me Diltiazem to try, which when I went back in March I reported didn't work. The guy I saw said LIS but he spoke to the CRS and he wanted a pressure test. It has come back as my muscle is normal to slightly weak, therefore they will not do LIS. To be honest I am having some leakage after my op in September. Its not exactly soiling myself but still there. Some weeks it is not happening at all and other weeks it sometimes happens. Anyway they want to see me for a clinical appointment to discuss 'managing' this difficult condition. I am not looking forward to it as I think they will say I no longer have any options left so it's live like this. Must admit I've just had a bit of a cry, been strong for so long but guess its just got on top of me. I'm only 30 and the thought of living like this doesn't bear thinking about really. Anyway, enough of that. If I don't get any help on the 19th August, I'm considering going to see Mr W for a second opinion. I guess you'd recommend him! I had hoped not to recognise any names on here returning today and was saddened to see you are still here. All the best for your surgery, I will be following this with interest. Please keep us updated :)