Looking for some guidance

6 months of this

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Re: Looking for some guidance

Postby Alyssa » 06 Oct 2014, 19:47

I just picked up lidocaine but the nifedipine takes a couple of days to get compounded.
2/14 Fissure developed
3/14 Diagnosed w/ fissure given Nifedipine
4/14 Referred to Pelvic Floor Physical Therapy=Pelvic Floor Dysfunction
5/14 Fissure declared "healed"/chronic anal pain persists
9/5/14 Botox to pelvic floor
9/22 biofeedback
Alyssa
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Re: Looking for some guidance

Postby Alyssa » 06 Oct 2014, 19:53

Msimon,

Have you decided what your next step is?
2/14 Fissure developed
3/14 Diagnosed w/ fissure given Nifedipine
4/14 Referred to Pelvic Floor Physical Therapy=Pelvic Floor Dysfunction
5/14 Fissure declared "healed"/chronic anal pain persists
9/5/14 Botox to pelvic floor
9/22 biofeedback
Alyssa
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Re: Looking for some guidance

Postby msimon » 07 Oct 2014, 00:21

Thanks for asking Alyssa. I am still on the fence. One day I want LIS, another I want botox and another I want to do nothing. Until I am sure I will do nothing. Don't want to make things worse again :(
Dec '13 Fissure from anoscope
3 X internal sphincter botox
'08-'15 Botox for pelvic floor dysfunction
Nov '14 LIS/sentinel tag removal
Feb '15 Deroofing of recurrent infection from LIS
summer '15-healed but still ongoing muscle dysfunction/pain
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Re: Looking for some guidance

Postby Alyssa » 07 Oct 2014, 00:40

As others have mentioned in forums only you can decide when you have had enough and decide to have surgery
2/14 Fissure developed
3/14 Diagnosed w/ fissure given Nifedipine
4/14 Referred to Pelvic Floor Physical Therapy=Pelvic Floor Dysfunction
5/14 Fissure declared "healed"/chronic anal pain persists
9/5/14 Botox to pelvic floor
9/22 biofeedback
Alyssa
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Posts: 735
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Re: Looking for some guidance

Postby pafen » 07 Oct 2014, 03:40

I definitely get more pain sitting down so I have bought one of those donut cushions for the car. Helps with the trips in the car.

I try to stand up most of the day to keep myself reasonably active. I have been told to give up riding the bike by my pain specialist but I feel more depressed if I don't exercise.

Mine is mostly burning but I must admit sometimes I get an irritation that's more crawling and itching.

I think it's more than likely nerve pain. Pelvic floor muscle spasm entraps the nerves in the area I think?
Hemroidectomy, anal abscess, fissure, LIS
Pelvic floor Dysfunction since late 2012
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Re: Looking for some guidance

Postby soey » 07 Oct 2014, 10:27

Pafen, be very careful when you sit on one of those donuts! I did, and I had a re-tear because of it. I think there was way too much pressure on my bum when i was sitting on it. Don't wanna make things worse. :)
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Re: Looking for some guidance

Postby Alyssa » 07 Oct 2014, 22:35

The irritation is something I really wonder about... My bum just does not feel normal! This irritation is driving me nuts; how do I calm it down?

I had hemoroids in the past and surgery and this irritation beats that!!!
2/14 Fissure developed
3/14 Diagnosed w/ fissure given Nifedipine
4/14 Referred to Pelvic Floor Physical Therapy=Pelvic Floor Dysfunction
5/14 Fissure declared "healed"/chronic anal pain persists
9/5/14 Botox to pelvic floor
9/22 biofeedback
Alyssa
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Posts: 735
Topics: 26
Joined: 29 Apr 2014, 11:24
Location: San Jose, CA
Has thanked: 136 times
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Gender: Female

Re: Looking for some guidance

Postby msimon » 08 Oct 2014, 00:39

Alyssa, what do you mean by irritation? What does it feel like? I have had irritation/pain down there for over 10 years and in that time have rarely been able to sit for more that a short period of time. I am fortunate to have been able to work my life around it but I totally hear your frustration. There were times that the botox really helped but it would always come back :(

Have you tried using heat? Before I ever found treatment I used to sit on a heating pad all the time. It really helped. Or maybe ice would even help. Sometimes alternating the two can confuse the nerves and help too.
Dec '13 Fissure from anoscope
3 X internal sphincter botox
'08-'15 Botox for pelvic floor dysfunction
Nov '14 LIS/sentinel tag removal
Feb '15 Deroofing of recurrent infection from LIS
summer '15-healed but still ongoing muscle dysfunction/pain
msimon
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Re: Looking for some guidance

Postby pafen » 08 Oct 2014, 01:59

Yeah I use one of those wheat heat pads you can heat up in the microwave. A lot cheaper than the sitz baths all the time.
Hemroidectomy, anal abscess, fissure, LIS
Pelvic floor Dysfunction since late 2012
pafen
Proctosphincteranalogist
 
Posts: 130
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Joined: 18 Aug 2014, 04:30
Location: Queensland Australia
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Re: Looking for some guidance

Postby Alyssa » 08 Oct 2014, 12:12

I feel irritation outside of the anus.. I notice it when I am standing or walking... It's hard to describe it exactly but it's prickly irritation. I never had that before this fissure!
2/14 Fissure developed
3/14 Diagnosed w/ fissure given Nifedipine
4/14 Referred to Pelvic Floor Physical Therapy=Pelvic Floor Dysfunction
5/14 Fissure declared "healed"/chronic anal pain persists
9/5/14 Botox to pelvic floor
9/22 biofeedback
Alyssa
VIP
 
Posts: 735
Topics: 26
Joined: 29 Apr 2014, 11:24
Location: San Jose, CA
Has thanked: 136 times
Been thanked: 41 times
Gender: Female


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