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New and beyond miserable...

Postby Datura » 01 Sep 2014, 20:00

Hello everyone,
I have been lurking on these forums for quite a long time (like 9 months long time) and finally decided it was time I said hi.

A little bit about me: Lifetime of IBS, first hemmie appeared after the birth of my 2nd child but went away relatively quickly. It reared it's ugly head from time to time but nothing generally a bit of Scheriproct didn't fix in a few days with some rest.

November of last year I had some digestive complications due to a procedure and got very stuffed up followed by 8 weeks of intense diarrhea (sorry TMI overload right there-what a way to introduce myself!) In between the 2 I thought my hemmie had flared up. No amount of Scheriproct would fix the problem so a visit to the local doctors office and I was informed I in fact had a thrombosed perianal haematoma. I was given a local that made me cry and want to die on the spot and it was lanced. 48 excruciating hours later I was finally in a tiny bit less pain and it healed up over the following 8 weeks or so. I have been absolutely terrified (understatement of the century) of getting one ever since.

About a month later I noticed I had this burning kind of pain going on back there. Sort of towards the tailbone but inside, a few centimetres upwards, not on the outside. I put up with it for a month or two and finally went back to my GP who told me I had small external fissure and told me to put antiseptic cream on it. I did this for 2 more months before complaining about the pain to another GP (the first one was actually a fill in as mine was away at the time). This pain was bothersome and most BM's felt as though they burned a little followed by this dull achy pain the remainder of the day. It was constant. Another GP (mine was away again) thought maybe I had internal hemmies or more likely a fissure. I was prescribed some hemmorhoidal suppositories which only made things more burning and gave me tummy pains and a bit o diarrhea so weren't really helping.

I put it off for another few months before mentioning it to my GP yet again. I was given a referral to a CRS who I am due to see in a week. THEN much to my horror, I spent a little long in the bathroom 14 days ago and noticed things back there felt a bit strained. I immediately started my scheriproct routine, however by day 9 it was not helping and I was in agony. A trip to my GP and I was diagnosed once again with a perianal haematoma (not thrombosed). 24 hours later it was and he attempted to incise it, however things didn't drain as he expected and he said that he thought it might actually be a thrombosed external hemmorhoid (I *think* it's a haematoma though, it's behaving just like my last one). Things felt better for 24 hours before getting bad again yesterday.

I had not much sleep last night and today there's an itch that makes me want to claw my eyes out as well as a sharp stabby kind of pain that starts in the tip of the things and goes up into my lower rectum. In between it burns and aches and sometimes throbs a little.
So things were obviously bad before but now I've had 14 days straight of not being able to think about anything but my bum. It's consuming my every thought. I cannot sleep, I cannot sit, I cannot walk, I cannot stand up. The only thing even remotely helping is to sit on a hot water bottle, a REALLY hot one.
I have 3 kids and am unable to get anything at all done. My poor husband is sick of listening to my moaning about how desperate I am and this appointment with the CRS can't come quick enough. But at the same time I'm petrified because I have to take an enema that morning (that's going to work well with this thing I have stuck to me) and I'm terrified he's going to want to do some kind of banding or worse, cut me open.

If you've made it this far, thanks for listening, I will try not to complain too much from here on in!

Too long didn't read: I have a sore bottom and it's miserable.
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Re: New and beyond miserable...

Postby Scientist2516 » 01 Sep 2014, 20:30

Oh Datura, that sounds wretched. I am so sorry. I know how consuming the pain can be.
Having young children makes it all so much more difficult.
I really hope your CRS can help you. Please complain here all you want. It's what the forum is for. We are all in this together!

:wel: :smilyhug:
Nifedipine/lidocaine, no help
Diltiazem, effective, but caused major rash
Nitroglycerine, effective.
Topical estrogen for final healing.
Gentle heat to bottom - pain relief, muscle relaxant
Kondremul mineral oil
Time - lots of time.
Status - Healed!
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Re: New and beyond miserable...

Postby Datura » 01 Sep 2014, 21:06

Thank you so much Scientist2516 :thankyou: ! It helps just to know I'm not alone, not that I'd wish this kind of devastating on anybody! I'm lucky that my kids aren't so little anymore. They still require some looking out for and meals and washing done etc but are otherwise mostly self sufficient (don't know how on earth I'd deal with any of this if they were toddlers!).

I think half of it is that I feel like if things are this bad for me mid 30's, how much worse can they get! They say these problems happen as you get older, I cannot imagine things getting much worse right now (although I am sure they likely could).
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Re: New and beyond miserable...

Postby Jbl22424 » 02 Sep 2014, 00:06

Sorry to hear about your struggles! Agree with Scientist, the forum is for complaining. :D I hope things turn a corner for you soon.
Developed fissure from constipation due to breastfeeding 7 weeks after delivery (Jan 2014)
Nifedepine
Colace
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Miralax - godsend
Nitro - some improvement
LIS (May 2014) - cured for 3 months then setback
Diltiazem
Feeling better for now
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Re: New and beyond miserable...

Postby woundedspirit » 02 Sep 2014, 10:31

Welcome. It really does help sometimes to reach out to others who are suffering the same kind of pain. And there is so much good practical information here too. What are you using to keep stools soft? I don't know what scheriproct is (will look that up), but that is so important which I am sure you know. Very warm water soaks in tub or sitz baths I have found ease the pain and just help things in general. Topical lidocaine is a life saver for me. I find that I can handle everything better when I have the pain under control first. Sorry you are so miserable right now.
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Re: New and beyond miserable...

Postby Datura » 03 Sep 2014, 04:57

Jbl22424 thank you so much :) It's good to have somewhere else to complain ;)

woundedspirit, thank you to you too :) Thankfully things are feeling marginally less painful today although I still have this unknown lump going on that's rather large and scary. If I'm hurting tomorrow again I'll head back to see another GP otherwise I think I'll wait for the CRS.

I'm currently using Coloxyl (without senna) to keep things soft and trying not to eat too much constipating food. This is tough because mostly I've suffered from diarrhea in the past. These days I alternate wildly but fibre supplements generally cause diarrhea by day 3, even at 1/4 tsp per day and psyllium just caused lots of pain. Even eating too much fibre can cause me trouble. There's such a big list of foods that don't agree with my stomach and most of them are what are good for keeping you going. I'm not much of a fan of the coloxyl. I still find it upsets my stomach a bit and it causes sludge rather than soft poops and then there's too much difficult clean up (sorry, once again tmi!).

Scheriproct is just an anasthetic/antiseptic type cream like anusol only it's prescription so a little stronger.
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Re: New and beyond miserable...

Postby woundedspirit » 04 Sep 2014, 23:32

Yes, diet can be tricky especially when you already have food sensitivities. Have you ever tried Miralax? It comes in a powder (really more like sand) and is easily adjusted if stools become too loose. I take it daily. I also have to be very cautious with fiber. Too much bulks up the stools and can easily cause constipation. Hope your pain has been less today and that you are able to get some restful sleep. :)
Hemorrhoid Surgery
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Failure of All Topical Treatments
Failed LIS
[size=85]EUA and Fissurectomy
Hoping to avoid Flap Surgery
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Re: New and beyond miserable...

Postby Datura » 05 Sep 2014, 04:15

Ahh yes, I think so, here it is called movicol but I think it's the same. Problem is I alternate wildly. I can swing from being constipated to diarrhea in about an hour (even when I am regular it's no guarantee). I tried movicol during a particularly bad c phase and had to drink something like 6 sachets a day. Needless to say it worked for C but went way too far! I haven't tried it regularly in smaller amounts though because of the d attacks (can't win, poor bottom kills either way!).

Thank you for the well wishes. Things are easing up a bit. I went back to another doctor in the centre who said it was definitely a perianal haematoma that had become thrombosed (my 2nd one in less than a year!) and that it was on it's way out. Still sore but feeling better than it was today (other than the incredible itching!).

Not really looking forward to the enema I have to take Monday morning after having a d attack last night, for the CRS visit, but interested to hear what he thinks.
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Re: New and beyond miserable...

Postby Datura » 08 Sep 2014, 22:20

Just an update for anyone interested.

I saw the CRS yesterday afternoon. He didn't seem to be too interested in the pain I had been experiencing since last November. He seemed to think I was there about my IBS and after a tummy and hernia check tried to send me on my way to eat more fibre and go running every day for 15 minutes.

He also told me that everyone has hemmorhoids but that they get irritated when people don't poop properly but if I started to they would go away (not sure why on earth people get them banded etc if this were 100% true).

I had to remind him that I was there about the pain and he did a finger examination determining that I have no fissure and no internal hemmorhoids and to go home and eat more fibre that they can't do anything for sore bums (his words) that don't have anything wrong with them.

I felt pretty dismissed and can't believe I paid this guy $180 for that. He was unhelpful about why I might be experiencing this pain and clearly had no solutions for me. Very frustrating. I feel like I'm still in the dark although I am glad I do not require any kind of scary surgery that my GP thought I might but still.
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Re: New and beyond miserable...

Postby Scientist2516 » 10 Sep 2014, 08:54

How frustrating. Why do some doctors not listen to their patients? How could a sore bum not have anything wrong with it? Don't they know what it's like to live with constant pain?
Did he have anything useful to say about your IBS?
Do you feel that he is correct to advise more fibre? You say it gives you diarrhoea, and pain. Do you have an IBS specialist you can see?
(Are you in Britain? I know it can be really hard to see specialists in Britain).
Sorry, I don't have anything much useful to say, except that fibre isn't always the answer. Some people do better with low fibre diets, and certainly too much fibre can be way too bulky for sensitive bottoms.

Glad to hear there is no fissure though. I hope you find an answer about the pain.
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Nifedipine/lidocaine, no help
Diltiazem, effective, but caused major rash
Nitroglycerine, effective.
Topical estrogen for final healing.
Gentle heat to bottom - pain relief, muscle relaxant
Kondremul mineral oil
Time - lots of time.
Status - Healed!
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