Hi everyone and particularly to HappyAss. Thanks for thinking of me and wondering how I was doing. I was just reading several of the post LIS folks reports and was glad to see you are still doing well. Your toilet seat sounds interesting!
So last time I posted was Friday January 28th and after almost two weeks of no pain or bleeding I had a bad day ending with a very tight feeling and more pain than I've had for a while. After each of the two botox treatments I have had, I think I have gotten better each time, but what has happened is I have about a week or almost two weeks of pretty good other than skin tag irritation and then out of nowhere have pain and bleeding. I do have to say that the pain has not been as bad as in the beginning. Still after about 11 months now, it is discouraging. Maybe after all that time I have just gotten used to a certain level of discomfort and have almost given up on the notion of feeling completely normal every again...
So about three weeks ago I called my CRS and he was supposed to call me back. He never did and that did impact my thinking about him. I wondered if I was really with the right person,even though he has a very good reputation. Then I had my bad day that Friday and thought I'd just have to try and call him again on Monday or that next week since I was about 3 weeks post second botox round. In the meantime, my husband and I did something very unlike us and decided to fly to Monterey California on Sunday, Jan. 30th. I had some pain and bleeding that morning and was just resolved to go have fun anywayand not let this stupid thing impact my life anymore! And my cell phone rang and it was my CRS- on a Sunday at noon 3 hours before we needed to leave for the airport. He had discovered the note and my chart asking him to call me from 3 weeks ago at the bottom of a stack of things he was working on at home and called to see how I was and to apologize profusely. When he asked how I was, I told him that three days before I would have said pretty good, but that I had had this setback. He said he thought that after two rounds of botox I should be better and that he thought we should schedule the surgery. Hearing that we were leaving on a trip, he offered to call in Vicodin and lidocaine appointment prescriptions for me. I asked him what we should do if I was suddenly better, since I seem to have that pattern and he said he didn't think we should be "fooled" into thinking I didn't need the surgery.
So we left on the trip and I felt much better- about him as my Dr. and having a backup for pain if needed. So we got there and of course (and thank goodness) I was better ever since.
So I never really needed to use the pain meds or the lidocaine. Now I find myself questioning if I am just going to mess things up with surgery after finally getting better. My husband and sister keep reminding me that he said we should go ahead and that I was better for an entire month back in September. Reading some of the LIS reports make me feel like it will all be fine and the right thing to do. And others frankly scare the ____ out of me!
Sorry to typically be so long, but I am by myself tonight and really letting my anxiety get the best of me. I think I'll go watch reruns of Gilmore Girls and curl up with my dachshund!
Thanks for listening!
Bambi
P.S. This was one of the best and most spontaneous trips of my life!