I am sorry to hear all you've gone through. Is there a possibility for (a), a second opinion or (b), getting a sooner appointment with CRS? This really seems to be who you should be talking to. Alternatives... Any chance for some serious pain killers (not that they've helped me all that much), or possibly alternative medicine (acupuncture/Chinese herbalist)? The latter was one of my possible next steps. Just some thoughts. I've had others as well, but you don't want to go there. Good luck!