Been away from the boards for a couple weeks. The new $$$$ medication is working wonderfully. Most of the time I feel normal, some of the time I feel true discomfort, and occasionally I feel pain. Along with 3/4 of standard does of Miralax daily, and 5mg valium at bedtime only, I am extremely pleased with the results. The medication is applied topically 3-4 times a day. I try to only use it 2 times, and sometimes I apply a small (half an english pea) amount then apply my nifed/lidocaine. Trying to stretch it out. This medication works best when massaged into the sphincter for about a minute. Sometimes it stings a little bit when applied, but that is nothing compared to the severe burning we know too well around here.
The specialty compounding pharmacy website: https://www.totalpainrx.com/story.php
If you are interested, have your doctor contact the pharmacy directly. I do not have any information on the amounts of medication included in the emollient base. I do know these are powerful drugs. If I use too much, I know it. If I stoop then stand back up too quickly, I feel faint (like pregnancy blood pressure drops). Other than that, I have been extremely pleased. It does not impair my ability to drive.
ingredients:
ketamine - dissociative anesthetic used primarily in pediatric and veterinary anesthesia
baclofen - muscle relaxer and an antispastic agent
bupivacaine - local anaesthetic, used as a nerve block, commonly administered in an epidural
cyclobenzaprine - skeletal muscle relaxant (flexeril)
diclofenac - nonsteroidal anti-inflammatory drug used to treat pain and inflammation
gabapentin - seizure medication, also commonly used for neuropathic pain
nifedipine - calcium channel blocker to help relax smooth muscle tissue
emollient base (does not appear to be petroleum based--not vaseline)

The price of the medication varies based on your insurance, your copays, and if you are uninsured. The American medical system is so defunct. Getting a straight answer about the cost of the medication is difficult.

momof7
So glad to see an update and hear you are making progress!
Thank you for coming back and posting the compounded medication you are using. I hope you'll keep us updated (and hope that you have continued success!)