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Hello!

Postby Edmondefreud » 11 Jun 2015, 00:37

Where to start?

First things first, I am new here but I've been searching for some info here for quite a long time. I'll try to make thing as clear as possible. 25 y/o gay men (I don't usually say this first thing but thought it was pertinent) diagnosed with chronic AF for 3 years now but having it since 6 years now and always the same one. Got a wrong diagnostic first, thought it was a wart then got to a STD specialist who didn't do anything about it except tell me to use a feminine condom for intercourse. :wtf: :scratch: Wich isn't that crazy considering it would reduce the friction. I left it like that for a while (and lived with the pain) and then decided to talk about it to my family doctor and then she referred me to a general surgeon and after 1 year of different cream (wich didn't work at all for me except the headache part) decided to go through LIS on October 2014. Been okay for a while and also started self-dilation, coconut oil and relaxation with yoga and breathing exercises to ensure a less *rough* intercourse, and then, catastrophy, bad BM and made a new fissure but internal (can't see it from outside) on top of the other one, wich is completely healed, says my general surgeon. He also told me he wouldn't act on it, it should heal completely by itself but I asked him to have the ointment paired with the LIS he said it could be a good combination. (diltzawhatchamacallit) 4 weeks on it today and seems to be working wonders I don't even flinch when I putt it in there with my finger. (sorry for the graphics)

Here's the deal, first, I don't have any pain, constipation or discomfort like some of you seem to have. I eat healthy and exercise but as soon as it's on the intimate part, nervous breakdown, and spasm and pain and soreness and, and, and, you know the rest. I'm at a point that I have stabilized my situation but can't seem to have any more improvement and my boyfriend from the last 10 years is very comprehensive but he can't take my obsession over this anymore. So I decided to find a good way to express myself and leaving him alone because it's a difficult situation as a person but also as a couple, add the gay factor and it's a pure mess. :~!@:

Also the surgeon didn't know what to tell me anymore so he sends me to see another person who is really a specialist for CRS. Going there on august 3 wich is sooooo far,and I'm really impatient. I just don't feel like a normal person anymore and I really feel like I'm becoming my fissure more than myself because everything I do in my life since the last 3 years is focused on the fissure, as far as eating, bathroom, exercise, sleep etc.

That pretty much sums it up if some things weren't clear just ask.

P.S. A very special thanks to the person who thought of getting this forum on it was a light in the dark for me. I don't feel as much alone because, admit it there are far more glamorous illnesses in the world that have much more visibility and there's absolutely no information whatsoever out there.
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Re: Hello!

Postby owmybum » 11 Jun 2015, 15:00

Hi Ed..... And welcome to the forum!!

Most of us on here can relate to living our lives around our fissures.... Especially after 3 years. It's so draining for us and those around us!!

I can appreciate how hard it is to be living like this as a gay couple, so it's great to see you have an appointment with an actual CRS. Hopefully he will be able to work out a plan to get you fully healed, and stay that way. Don't worry...... August will soon be here!

Diltiazem can work wonders, and you may find you can heal this new fissure by using it even before your CRS appointment.

OMB x
fissure after hem banding and tag removal feb 11
Pelvic floor therapy
Diltiazem
Botox June 13
Nitro
Internal flap July 14
EUA and polyps removed Nov 14
Diagnosed with neuropathy Jan 15
Diagnosed with HS EDS type 3 (causes poor wound healing )
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Re: Hello!

Postby Edmondefreud » 11 Jun 2015, 19:12

Thanks!
I really hope to get it healed before the appointment and my general surgeon said he also wanted the advice of a more experienced and specific specialist because I feel a certain amount of tightness (spasm mostly when I am stressed) even though I had LIS.
He said that she was a big shot as a CSR in my region. She is located in a big city so there's a chance she's seen quite a few type of people having the AF problem with different lifestyles and she might give me a more specific treatment or solution. He even said she studied the Lord's dilation procedure and then explained to me what it was. Horrifying in my advice.
Fingers crossed and holding on.
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Re: Hello!

Postby Scientist2516 » 11 Jun 2015, 22:41

Welcome Edmondefreud. I'm sorry you are suffering. I can only imagine how difficult your life must be with the fissure. To be honest, when I had my fissure it was very difficult to maintain a good sex life even as a straight woman. It's just not sexy to be in so much pain and constantly having greasy medications on your bottom. I really hope you recover totally. Good luck with your appointment!
Nifedipine/lidocaine, no help
Diltiazem, effective, but caused major rash
Nitroglycerine, effective.
Topical estrogen for final healing.
Gentle heat to bottom - pain relief, muscle relaxant
Kondremul mineral oil
Time - lots of time.
Status - Healed!
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