Help! Fleet Enema

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Re: Help! Fleet Enema

Postby msimon » 09 Nov 2015, 11:56

I am so sorry Anniebee. I know just what you are going through. Made me so angry. Hang in there. Soon it will be just a memory.
Dec '13 Fissure from anoscope
3 X internal sphincter botox
'08-'15 Botox for pelvic floor dysfunction
Nov '14 LIS/sentinel tag removal
Feb '15 Deroofing of recurrent infection from LIS
summer '15-healed but still ongoing muscle dysfunction/pain
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Re: Help! Fleet Enema

Postby anniebee » 09 Nov 2015, 12:23

Thank you. The pain is very extreme so how would I know if I just need to get to emerg? I told the lady on the phone it is worse every day. She said "go see your family doctor". At one point my doctor told me she sent a person to emerg with similar pain. Person waited 10 hours and then sent home without even an exam. Sorry, venting right now. Anger and anxiety makes the pain worse.When i am awake, I have to stand for most of the day as I can't sit. Can't lie down either. Apologize for venting. I have oxycodone prescription from dr. but terrified it will give me constipation plus always feel awful on painkillers.
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Re: Help! Fleet Enema

Postby Savaici » 09 Nov 2015, 13:20

Go to a doctor, even if you have to pay. Or go to the ER. This is not right that you have to put up with extreme pain. :smilyhug:
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Re: Help! Fleet Enema

Postby msimon » 09 Nov 2015, 13:41

I would go too. Yes it could be a vey long wait...but hopefully they can help. I really hate our systems sometimes!
Dec '13 Fissure from anoscope
3 X internal sphincter botox
'08-'15 Botox for pelvic floor dysfunction
Nov '14 LIS/sentinel tag removal
Feb '15 Deroofing of recurrent infection from LIS
summer '15-healed but still ongoing muscle dysfunction/pain
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Re: Help! Fleet Enema

Postby anniebee » 09 Nov 2015, 15:23

Before I had CRS appointment I saw 3 different doctors for maybe a total of 12-15 visits. I lost count.Misdiagnosed as Fis/hems. Was told I def. had hems by GP's.Putting in hem cream and suppositories and hitting the roof with more pain and had a wrong diagnosis the entire time. CRS said there are no hems, it is the fistula.So I have had a fistula for months and months. So no point going to another dr. As far as Emerg. it is not a good place to go in this city. You just wait hours and hours and if they saw me,they will probably do nothing since I have seen a CRS. If there was a private clinic, would consider. I appreciate all of your input. I am going to have to pace, cry and scream for the next while while I continue to wait for my "Urgent Surgery".
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Re: Help! Fleet Enema

Postby msimon » 09 Nov 2015, 17:25

I know where you are coming from. My fistula tract began forming over the Christmas break last year (a couple months after my LIS when an abscess formed) and my CRS was away and left nobody in his office to take care of his patients, should a problem occur. I expected a problem too as he had already treated me for an abscess, not by opening it up but by giving me really nasty antibiotics that made me feel like I was dying every day. The antibiotics were the only thing that would have me feel like I was getting better (swelling, heat and spasm reduced) but would only get worse again each time I went off (and these were the really dangerous kind too that should only be taken for a short time-I spent 3/4 weeks on them because people couldn't figure things out-it was hell! And a big no-no, but I had no choice at the time. My GP couldn't believe this. I called my CRS's office and they told me to go to emergency. Nobody there would see me and I clearly needed an experienced CRS. What a joke. Like I wanted to sit there writhing in pain only to be seen by some generic ER Dr who would likely dismiss me as it was non-life-threatening or make things worse because this requires specialist's attention.
My GP actually called my CRS's office after I told her this and she had them okay me to see another Doctor- general surgeon- in the hospitals outpatient clinic where I had my surgeries. It was nice she did this but he was of no use as he couldn't see the infection. Problem was that I was on antibiotics at the time so it was getting better. What I needed was to have a proper investigation- EUA- so for this I would have to wait for my CRS to return. He wouldn't even give me more antibiotics so that time was really bad. Christmas was awful. When my CRS came back I still had to wait longer yet until he had ER time for me. He even yelled at me once when I was 'being impatient' about it all! The whole ordeal took months!
Just wanted to share this to let you know that I understand your frustration with our system but also that things worked out in the end. I had to take a lot of pain pills and antibiotics to get through that time but I am trying to move forward now and have mostly let go of it. I wish I could offer you some more advise or help in some way. Just know you are not alone and things will get better. I wonder if a round of antibiotics would at least keep things at bay for you until they can get in there. They would at least reduce some of the bacterial multiplication. I was on Ciprofloxacin and Flagyl (they should be given together). Maybe even your GP could do this for you?


:smilyhug:
Dec '13 Fissure from anoscope
3 X internal sphincter botox
'08-'15 Botox for pelvic floor dysfunction
Nov '14 LIS/sentinel tag removal
Feb '15 Deroofing of recurrent infection from LIS
summer '15-healed but still ongoing muscle dysfunction/pain
msimon
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Re: Help! Fleet Enema

Postby anniebee » 09 Nov 2015, 18:29

msimon, thanks for writing that! I will call the office again tomorrow and see if anything can be done. Leaving people in pain like this is just inhumane. I took cipro for something 10 years ago and my tongue swelled. I have also been on flagyl for an infection after a D and C and I almost went crazy on those pills. Worst thing I ever took in my life! Glad you mentioned those two things as I do not want to be on either again.
anniebee
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