Pelvic Floor Dysfunction

Fissure like pains...anyone?

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Re: Pelvic Floor Dysfunction

Postby owmybum » 10 Jul 2015, 03:37

Any break through s?? Alyssa? Pafen?

I'm seeing a specialist in pelvic pain on Monday. I'm hoping ill get a good plan of action.
fissure after hem banding and tag removal feb 11
Pelvic floor therapy
Diltiazem
Botox June 13
Nitro
Internal flap July 14
EUA and polyps removed Nov 14
Diagnosed with neuropathy Jan 15
Diagnosed with HS EDS type 3 (causes poor wound healing )
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Re: Pelvic Floor Dysfunction

Postby vdb324 » 10 Jul 2015, 21:32

Alas, I see I've posted on the wrong board about my PFD post-fissure. I'm not sure if the fissure or PFD came first, but I'm still having spasming and rectal/low back/tailbone pain. This was with my spinchterotomy in March 2014. I was diagnosed with PFD this past month, and I am attending pelvic floor therapy and was recently prescribed diazpam to relax the muscles. I'm surprised there isn't more talk in the CRS area about PFD. Those more on the PFD side are very familiar with fissures being related. I didn't get the same impression from the CRS side.
Feb. 2013 - Developed AF
July 2013 - Diagnosed AF;nifidepine lidocaine treatment
Oct. 2013 - 1st round of Botox & skin tag removal
Dec. 2013 - 2nd Botox
March 2014 - Spinchterotomy
June 2015 - Diagnosed with Pelvic Floor Dysfunction/Vulvodynia
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Re: Pelvic Floor Dysfunction

Postby msimon » 10 Jul 2015, 23:05

I am in the same boat. I agree, there is not enough recognition of this. How does your pelvic floor dysfunction affect you? My muscles contract when I need to have a BM. I have been in physio for this now for 5 months. How often do you go for physio? Is anything helping?
Dec '13 Fissure from anoscope
3 X internal sphincter botox
'08-'15 Botox for pelvic floor dysfunction
Nov '14 LIS/sentinel tag removal
Feb '15 Deroofing of recurrent infection from LIS
summer '15-healed but still ongoing muscle dysfunction/pain
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Re: Pelvic Floor Dysfunction

Postby pafen » 11 Jul 2015, 01:59

I am still around, I am onto my third pelvic floor physiotherapist. This one has actually made some progress with me. Some of my trigger points were about an 8/10 in particular my most painful trigger point posteriorly. Physio has got this down to about 3-4/10 on palpitation now. This trigger point is actually a rectal scar.

I thought it might have been the muscle relaxants but since I stopped them the reduced pain level remained.

Of course I am still not fully cured.

I see a new pain specialist on the 30th of July about doing something about my scar tissue. My PT wrote a letter to the pain specialist for me explaining what she thinks is causing the pain (scar tissue from past surgeries).
Hemroidectomy, anal abscess, fissure, LIS
Pelvic floor Dysfunction since late 2012
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Re: Pelvic Floor Dysfunction

Postby vdb324 » 11 Jul 2015, 21:37

I am pretty sure I have the same thing - contracting with a BM. They also go into spasm sometimes. I have only made two rounds of PT so far, but I am slated for at least 16 weeks of it. The doctor I visited earlier this week placed pressure on the back of the vaginal wall and there was so much pain and discomfort in the rectal area. It sent my pelvic floor into spasm for at least 6 hours, making it uncomfortable to sit.
Feb. 2013 - Developed AF
July 2013 - Diagnosed AF;nifidepine lidocaine treatment
Oct. 2013 - 1st round of Botox & skin tag removal
Dec. 2013 - 2nd Botox
March 2014 - Spinchterotomy
June 2015 - Diagnosed with Pelvic Floor Dysfunction/Vulvodynia
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Re: Pelvic Floor Dysfunction

Postby owmybum » 21 Aug 2015, 13:26

I'm still on the waiting list for physio to start. It's so frustratingly slow. :(
fissure after hem banding and tag removal feb 11
Pelvic floor therapy
Diltiazem
Botox June 13
Nitro
Internal flap July 14
EUA and polyps removed Nov 14
Diagnosed with neuropathy Jan 15
Diagnosed with HS EDS type 3 (causes poor wound healing )
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Re: Pelvic Floor Dysfunction

Postby Shania213 » 05 Nov 2015, 14:44

Alyssa wrote:Has anyone been diagnosed with Pelvic Floor Dysfunction after they suffered from a fissure? If so, what are your symptoms and what have you done to treat this? I've never had pain in the a** like this until I got a fissure.

P.S. I had a fissure for 2-3 months and it healed, the issue is that I continue to have fissure like pains, no visible fissures have been detected since it was 1st diagnosed 6 months ago. The first doctor, referred me to physical therapy and the therapist stated that I have Pelvic Floor Dysfunction (tight muscles)... the chronic pain doctor believes that my chronic pain is due to "Myofascial Pain"; she suggested I try Botox in the pelvic muscles. During our consultation, I asked her what do I do if the pain comes back? she stated that we would book another round of Botox. Does that mean that I have to depend on Botox for the rest of life to fix this or is it only temporary?

I was feeling hopeful last week but now that I am decompressing all this information, it has left me at a standstill.. Most of you have a clean cut diagnosis (fissure, botox, LIS) but mine is much more complicated!

I have pain during bowel movements almost every day (hot, stinging, burning) and dull rectal pain throughout the day; paper cut feeling around my anus, soreness and bleeding some days.



Hiya Im just curious-how did you get diagnosed with a pelvic floor dysfuntion- was it through an over the top scan of your organs?
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