by patience_and_healing » 13 Apr 2019, 10:35
@SueMac- The doctor wants to figure out which muscles aren't working correctly during a BM and causing pain, so that she can decide what treatment plan to follow. It could be Botox or something else. I'm not seeing my PT as often because I've kind of plateaued in terms of progress. I saw her every week for seven weeks and made good progress, so now I see her every 2 weeks. She says my muscles feel relaxed now, so the pain remains a mystery. The manometry nurse mentioned in passing that she feels the sphincter is very tight, but that may have been because the catheter was causing a burning sensation, resulting in tightness. I encourage you to keep up with PT, but it's important to have a short gap between treatments, like a week. Don't be afraid to find a new one if the current one isn't as knowledgeable. There are other forums for pelvic issues where people could recommend a PT in your area. My PT even had my husband come in to a session and explained the problems as well as showed him how to help me with home exercises.
@chachacha: Thanks! I thought the MRI was bad but the manometry was worse. But I think each one was horrible in its own way. Trying to poop out gel while trying not to panic in an MRI tube was certainly a novel experience. Not to mention the alarming thunk-thunk background noises of the machine.
8/16-12/16: Fissure due to antibiotics
5/17: Botox to sphincter, fissure healed
9/19: Trigger point injections and pudendal nerve block
11/19: Botox to pelvic floor
8/20: Botox to pelvic floor in new location.
On and off in pelvic physical therapy