Owmybum s flap diary

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Re: Owmybum s flap diary

Postby owmybum » 19 Jan 2015, 11:46

Yes, my pain is through the roof sometimes.... I can't believe I'm not fissured!!
Yes, I think it's a logical step to take... It's non invasive... What have I got to loose.
I just hope I'm not waiting too long to get an initial appointment with the new consultant.

Jlm1........ Have you noticed any improvement since using the electrical therapy? How long have you been doing it? Remind me... What have you had done surgically??

Thanks scientist and Rachael!
:afsmile: :thanx: :thankyou: :smilyhug:
fissure after hem banding and tag removal feb 11
Pelvic floor therapy
Diltiazem
Botox June 13
Nitro
Internal flap July 14
EUA and polyps removed Nov 14
Diagnosed with neuropathy Jan 15
Diagnosed with HS EDS type 3 (causes poor wound healing )
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Re: Owmybum s flap diary

Postby richibeno » 20 Jan 2015, 00:00

Omb ,fantastic news 'im so happy 'so pleased its healed up OK
Was it Mr w again
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Re: Owmybum s flap diary

Postby jlm1 » 20 Jan 2015, 10:02

I have been doing the electrical therapy for about 6 weeks, during physical therapy which I have twice a week. I think it's helping but I'm still in pain so who the heck knows! I do think that it may be too soon to tell. It seems as if these sorts of injuries take a loooong time to heal and there is just not a lot known about neuropathic pain.
My CRS has said that the fissure is healed and, while I like this doctor as she has been informative, gentle and listens, I do think she is at the end of her ability to help me. Just to re cap: I got a fissure in late May, tried nitro and diltazam then finally had botox in July. Got an abscess that was drained and then a fistula, which I had surgery for in October. Basically part of the fissure did not heal from the inside out so that part was cut open so it could heal properly. The CRS also told me that she removed a part of the skin tag too. I thought things were slowly looking up but then the burning started.......and then pinching during BM's. This worries me as I have not had pain during bm's since the fissure. It goes away right after and then the burning starts.
So like I said, I think this CRS has done all she could. I saw her last week and she said all looked good, fissure is healed, an internal hemmie looked aggrevated an maybe that was contributing to the pain. She said if it got bad, we would remove them, But after everything I have read here, that is the last thing I want to do. No more surgery unless absolutely necessary. She mentioned levator ani syndrome and nerve pain again. I have taken time off of work to deal with this.
The physical therapists who I am seeing for pelvic floor dysfunction have been very helpful. I should mention that when I had my baby 2 years ago, it appears something shifted and I have been having talibone discomfort which is what let me to the physical therapy. It was there that I started learning about the connection between the fissure and tailbone discomfort. I thought there had to be a connection but my doctor said no, the CRS said no and then finally the physical therapists said, of course it's all connected. At least I sopped feeling like I was crazy. The therapists said that it's all muscle down there and a small one at that. When something is pulled taut, it can make the nerves fire off and that it what is causing the burning pain. It's unfortunate that doctors are not trained in this and do not know a lot about nerves and muscles, etc. I am doing lots of stretching and certain exercises. I have to say that I find the stretching to really, really help the burning pain. That and ice even though I prefer a hot bath.
Hope some of this helps you! Please keep me posted and let me know how it's going! And hang in there. It just has to get better. The body wants to heal itself.
fissure May 2014
nitro, diltiazem
botox July
fistula surgery, piece of skin tag removed Oct
fissure declared healed Dec
currently have burning/pain-told it is nerve pain
physical therapy, sitz baths, valium suppositories
hoping I am healing
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Re: Owmybum s flap diary

Postby owmybum » 20 Jan 2015, 15:53

Hey richi...... Nice to see you!

How have you been?? How's your clean up situation now??

Yes... It was mr w. he has been really helpful this time.

OMB xxxx
fissure after hem banding and tag removal feb 11
Pelvic floor therapy
Diltiazem
Botox June 13
Nitro
Internal flap July 14
EUA and polyps removed Nov 14
Diagnosed with neuropathy Jan 15
Diagnosed with HS EDS type 3 (causes poor wound healing )
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owmybum
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Re: Owmybum s flap diary

Postby owmybum » 20 Jan 2015, 15:59

Jlm1... Thankyou for giving me so much of your info.
It's really good that you are having PT twice a week.
My pelvic floor lady told me that everything down in our pelvis is connected.... It's such a complicated area!
I used to get awful coccyx pain after Botox. I never understood why I suddenly got it... And all the CRSs poo pooed it telling me it was not fissure related. It went after about 8 months or so.
My advice to you regarding hems.... Leave well alone! They will go down with care attention and time!
Where abouts in the world are you?
:thanx: :afsmile:
fissure after hem banding and tag removal feb 11
Pelvic floor therapy
Diltiazem
Botox June 13
Nitro
Internal flap July 14
EUA and polyps removed Nov 14
Diagnosed with neuropathy Jan 15
Diagnosed with HS EDS type 3 (causes poor wound healing )
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owmybum
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Re: Owmybum s flap diary

Postby richibeno » 20 Jan 2015, 22:58

Hi omb
Yes I'm not to bad try tl live as normal as I can
Always like to know where a toilet is in case of emergency
clean ups are pretty much the same always shower after try to keep it clean as poss 'normaly go back later for a quick clean but hey ho
Living normally though have put a ton of weight back on

till take a little movicol every night '

But things aren't to bad '
Here's to health and happiness
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Re: Owmybum s flap diary

Postby jlm1 » 21 Jan 2015, 08:58

I think it's amazing how little doctors know about the connection of all in that area! I am still baffled that I was told that there is not connection between the tailbone discomfort I was having (which was before the fissure) and the fissure itself. I believe that things shifted during my pregnancy and then they didn't quite shift back properly. While my physical therapists have said that they do not think that this caused the fissure they said that it may have created an environment that is conducive to getting a fissure. So combine that with a lifetime of constipation and straining ann bam! I didn't realize though that the botox I had in July could also be contributing to discomfort in that area. I had an x ray a few months ago and it showed inflammation. My doctor wanted to do an MRI but that insurance wouldn't pay for it. But they would pay for pysical therapy which is how I was able to start that. I think I am going to try to push for an MRI though so we can see more of what is going on in that area.
I am so afraid of getting another fissure!! But I guess at least I know that I can live through the pain if I have to.
Thanks for your advice regarding the hemorrhoids. I do not plan on having anything done unless there is not other way! Any cut in that ares is juts not good, as I am beginning to find out.
I am in Brooklyn, NY :)
fissure May 2014
nitro, diltiazem
botox July
fistula surgery, piece of skin tag removed Oct
fissure declared healed Dec
currently have burning/pain-told it is nerve pain
physical therapy, sitz baths, valium suppositories
hoping I am healing
jlm1
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Re: Owmybum s flap diary

Postby owmybum » 21 Jan 2015, 12:26

Richi,

It's great to hear you are living like a 'normal' person again! And great news you've put the weight back on!
Having to go back for an extra wipe is a small price to pay to not have awful fissure pain... And the other complications you had with it!

Great news sweetie! X
fissure after hem banding and tag removal feb 11
Pelvic floor therapy
Diltiazem
Botox June 13
Nitro
Internal flap July 14
EUA and polyps removed Nov 14
Diagnosed with neuropathy Jan 15
Diagnosed with HS EDS type 3 (causes poor wound healing )
User avatar
owmybum
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Re: Owmybum s flap diary

Postby owmybum » 21 Jan 2015, 12:33

Jml1,

Yes, you may be right that your pregnancy may have misaligned certain ligaments etc.... It all has a knock on effect... And bingo... Fissure!
My MRI showed nothing... Even though my coccyx pain was pretty bad at the time.
You sound like you are doing the right things and having the less invasive type of treatments. Unfortunatly these things just take a whole heap of time to even show the tiniest bit of improvement.
Brooklyn NY......a world away from me here in the UK. It's great we have this forum to share info from all the corners of the world!

OMB x
fissure after hem banding and tag removal feb 11
Pelvic floor therapy
Diltiazem
Botox June 13
Nitro
Internal flap July 14
EUA and polyps removed Nov 14
Diagnosed with neuropathy Jan 15
Diagnosed with HS EDS type 3 (causes poor wound healing )
User avatar
owmybum
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Posts: 2851
Topics: 42
Joined: 16 Sep 2012, 16:00
Location: UK
Has thanked: 205 times
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Mood: UGH !

Re: Owmybum s flap diary

Postby pafen » 22 Jan 2015, 02:07

Omb,

CRS seems to think my pain is neuropathic as well from all the surgery down there and being in pain so long to set up those firing nerve pathways.

My pain specialist wants to try neurostimulation on me as well. It will be interesting to see what the pain specialist suggests for you.

In the meantime you should probably take what medication you can to get the pain better under control.
Hemroidectomy, anal abscess, fissure, LIS
Pelvic floor Dysfunction since late 2012
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