by Savaici » 30 Jan 2012, 18:36
Hi mm,
You should try for a CRS who also deals with PFDs. I know that there are a couple at the Cleveland Clinic and Mayo Clinic. Cherylk saw someone at Mayo, for a similar problem, I believe, though she did not have surgery. If you already have a complete diagnosis, ignore what I'm saying, but if you went to two different CRSs, it does not seem as if you do.
Val76, who lives in Germany, also has pelvic floor problems, and she had Standardized Anal Dilation (SAD), which helped with the anal problems, but she still has the pelvic floor problems. You might look for some of her posts too.
When it comes to BMs, I seem to suffer in a similar way to you. I eat all my food soft. I take MoM as Miralax did not work for me. I use a Sitz bath at the end of a BM to help with 'ending'.
I also get vulva pain, coccyx pain, and sometimes difficulty in urinating, but will say that it was all a follow-on from my anal/rectal problems.
About the first CRS not wanting to see you again, just go further with what YOU want for your health. Don't even worry. I am hoping to have an SAD, but I am also investigating my pelvic problems too.
Stay in touch.