by cherylk » 16 Jun 2008, 09:38
Lecia and BA,
I think the prob we have is this. No one (not even docs) has a perfect BM every single day. Our challenge is that we are already defective in the butt area. What a challenge for us to try to live day to day, be in a good mood, enjoy life, and be a good mate when we know that the sky could drop down for us at any given moment. Just a little trouble--be it too loose or slightly constipated--and we are depressed and willing to throw in the towel be that to have a colostomy, wish we were diagnosed with a terminal disease, or whatever. But yet we have to go on because we have parents, spouses (sometimes), and children that are depending (and wishing) for us to be around for awhile. But we want our prob to just go away. We don't care if that means getting our colon taken out, having Botox (which is still somewhat experimental), LIS surgery, or whatever. All we want is an end to our suffering, and we want to live a normal life and do what we want to do or go where we want to go, but some of us cannot do that now, and so we get depressed and discouraged, myself included. We worry that we will always be in a defective state. But we cannot worry because then our conditions worsen, so we are between a rock and a hard place with no end in sight, and then we get more depressed!! My big prob now is regulating my Miralax and deciding if and when to have the Botox which would necessitate me having to have the scope prior. I don't want to make things worse by having the scope if not needed.
I also think we are all good and caring persons. We didn't do anything to deserve having thiese fissures! We tried to do our best. If we had constipation like I do/did, we tried our best to get good medical advice and follow it to a tee. So, it truly sucks, but yet we all feel that we need to persevere and hope that our conditions improve by trying whatever treatment we deem is best for it. And then of course throw in the multiple opinions that we get from various docs, but yet we as lay people are supposed to be wise and smart enough to figure out what is best to do for our bodies even when the docs (who are supposedly smarter than us) don't even agree on a standard treatment protocol for AF's!! Just some thoughts from me today.
All the best,
C
P.S. Ba--I will pray for you tomorrow and try to send you healing vibs. My friend who had the gamma knife the same day of Ted Kennedy's brain surgery said that she could feel the prayers being said for her. Lecia--I will pray for you also because you are going through a rough time as well.