I give up

Just so discouraged

Are you having, or have you had a Lateral Internal Sphincterotomy (LIS)? Please share your experiences here, or ask any questions.

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Re: I give up

Postby Rachael 1984 » 19 Jul 2014, 14:25

Hi STOT,
I'm so sorry that you're still having the burning. You say your CRS is at a loss what could be causing it? Just thinking that it could be a reaction to the last few months of creams, ops etc.... Maybe you need a bit more time? Could you seek a second opinion? I know you want this sorted out, it's hard enough going through surgery and still to be having problems is a nightmare. Sending you loads of hugs. Xxxxxxxxxxxx
Hem Banding sept 2012
2Fissures
Nitro- Effective short term
April 2013-Botox-Effective short term
Diltazem-No effect, developed Rash
July 2014-Diagnosed High Resting Pressure
LIS performed on 17.9.14
Ongoing pain/re-tears. Awaiting pressure test results.
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Re: I give up

Postby sotiredofthis » 22 Jul 2014, 20:13

Back to the CRS tomorrow. 3 hours each way. Want this hell to just be over. :~!@: :tantrum:
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Re: I give up

Postby powderblue » 24 Jul 2014, 07:37

Any update for us?
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Re: I give up

Postby sotiredofthis » 24 Jul 2014, 13:32

Well, good news and bad news.

The good news is my fissure and incision are completely healed!

Now the bad news: My CRS was able to identify my exact pain spot and I just about jumped off the table. She thinks that it is some type of scar tissue near my original fissure that healed in a funky way and whenever I sit it spreads my butt apart and pulls which causes me the intense burning/stinging pain. This pulling has also caused a small cracked skin area at the tip. Probably more of the reason for the burning/stinging pain. I only have pain when sitting. I have a small bottom and not much padding for any kind of cushion so when I sit my butt cheeks pull apart. I had no pain when she would just touch the area. Only when she would pull my anal opening apart would I have any pain. And it was intense!!!

Unfortunately, it looks like my next option is more surgery. She wants to basically "release" the scar tissue and hopes that this will get rid of the pain as it won't be pulling anymore.

I have a million questions for her now that I've had time to think about it. I can't tell you how incredibly afraid I am of more rectal surgery! Honestly, I don't know what to do at this point. I can't live like this forever.

Thanks for asking!
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Re: I give up

Postby Jbl22424 » 24 Jul 2014, 23:31

So sorry you are still struggling but I'm happy that you got an answer! Have you considered getting a second opinion? Might help soften your fears of an additional surgery.
Developed fissure from constipation due to breastfeeding 7 weeks after delivery (Jan 2014)
Nifedepine
Colace
Magnesium
Miralax - godsend
Nitro - some improvement
LIS (May 2014) - cured for 3 months then setback
Diltiazem
Feeling better for now
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Re: I give up

Postby Madpain » 27 Jul 2014, 01:16

That's scary as hell. What can cause the fissure pain without there being a fissure?
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Re: I give up

Postby Alyssa » 31 Jul 2014, 17:50

Madpain,

My PT said that it is the tight muscles or nerves that cause the same pain...
2/14 Fissure developed
3/14 Diagnosed w/ fissure given Nifedipine
4/14 Referred to Pelvic Floor Physical Therapy=Pelvic Floor Dysfunction
5/14 Fissure declared "healed"/chronic anal pain persists
9/5/14 Botox to pelvic floor
9/22 biofeedback
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Re: I give up

Postby Madpain » 31 Jul 2014, 19:34

Is there anything they can do for you?
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Re: I give up

Postby Alyssa » 31 Jul 2014, 20:32

Yes, they have suggested that I try Botox on the muscles...
2/14 Fissure developed
3/14 Diagnosed w/ fissure given Nifedipine
4/14 Referred to Pelvic Floor Physical Therapy=Pelvic Floor Dysfunction
5/14 Fissure declared "healed"/chronic anal pain persists
9/5/14 Botox to pelvic floor
9/22 biofeedback
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Re: I give up

Postby Alyssa » 31 Jul 2014, 20:37

So tired of this,

How long did you have the fissure for? Can someone get scar tissue from having a fissure for just 2-3 months?
2/14 Fissure developed
3/14 Diagnosed w/ fissure given Nifedipine
4/14 Referred to Pelvic Floor Physical Therapy=Pelvic Floor Dysfunction
5/14 Fissure declared "healed"/chronic anal pain persists
9/5/14 Botox to pelvic floor
9/22 biofeedback
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