4 years of fissures

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Re: 4 years of fissures

Postby chachacha » 15 Feb 2018, 13:01

Great to hear that you've had your appointment and have a treatment plan in place. I hope that all of your issues are resolved soon.
Fissure since about 2007
Fissure diagnosed in 2011
Diltiazem for two years - didn't work well
LIS January, 2015
Hemorrhoidectomy December, 2017
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Re: 4 years of fissures

Postby dmcff » 15 Feb 2018, 13:06

Thanks, chachacha. It may take some time, but I'm determined to see the plan through and am hoping that it will work. In fact, I think hope is one of the important factors here.
2014 Anal fissure
2015 CAT scan, EUA and sigmoidoscopy, 2 MRI scans - 4 hospital stays - severe to low pain
2016 Anal fissure - pain severe then moderate to low
2017 Return of moderate pain
2018 Physiotherapy, pain management
2019-20 Just living with it
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Re: 4 years of fissures

Postby mmklinemm » 11 Mar 2018, 16:09

How are you feeling?
Status: LIS 20 Oct 2014, 2nd LIS 05 March 2018.
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Re: 4 years of fissures

Postby dmcff » 12 Mar 2018, 05:18

Healing is a slow process. I'm feeling somewhat better than I have for quite a long time, but am still bothered by discomfort that doesn't yet show much sign of levelling off. Giving up the laxatives was not so easy - I found I got constipated quite quickly without them, and have had to go back to taking small doses of miralax. I don't know exactly what the source of the problem is - probably just that the pelvic area is sensitive after years of inflammation. I'm looking forward to my next appointment at the pelvic floor clinic and getting more specific advice about exercises I can do.
2014 Anal fissure
2015 CAT scan, EUA and sigmoidoscopy, 2 MRI scans - 4 hospital stays - severe to low pain
2016 Anal fissure - pain severe then moderate to low
2017 Return of moderate pain
2018 Physiotherapy, pain management
2019-20 Just living with it
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Re: 4 years of fissures

Postby dmcff » 22 Mar 2018, 12:34

I had my third appointment at the St Thomas's pelvic floor clinic. The plan, as outlined to me by my physiotherapist, is to follow the qufora irrigation system - I'm being started on the 'mini' version of the system, which looks fairly easy to use, though I haven't begun to experiment with it yet, am aiming to do so tomorrow.

Again, I was asked a lot of questions about my diet and bowel habits, and was also given instructions about breathing exercises, together with some links to YouTube videos.
2014 Anal fissure
2015 CAT scan, EUA and sigmoidoscopy, 2 MRI scans - 4 hospital stays - severe to low pain
2016 Anal fissure - pain severe then moderate to low
2017 Return of moderate pain
2018 Physiotherapy, pain management
2019-20 Just living with it
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Re: 4 years of fissures

Postby mmklinemm » 23 Mar 2018, 06:59

That looks very interesting. Good luck and keep us posted!
Status: LIS 20 Oct 2014, 2nd LIS 05 March 2018.
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Re: 4 years of fissures

Postby dmcff » 23 Mar 2018, 10:10

Thanks. The system is reasonably easy to use, but is clearly going to require a bit of practice. The chief difficulty I had was in squeezing all the water out of the bulb in one go. However, I did manage to inject about three quarters of the water into my colon. Then it flowed out again, together with some small particles of stool, though i also found that inserting the nozzle caused a BM - not sure if that's meant to happen. Anyway, practice makes perfect, and I guess I'll be doing this on a more or less daily basis from now on. It's rather similar to administering an enema.

The only real objection I have to the system so far is that inserting the cone into the rectum is a fairly sensitive process, as things are quite inflamed in that region. But it's not too bad, and I'll persevere.
2014 Anal fissure
2015 CAT scan, EUA and sigmoidoscopy, 2 MRI scans - 4 hospital stays - severe to low pain
2016 Anal fissure - pain severe then moderate to low
2017 Return of moderate pain
2018 Physiotherapy, pain management
2019-20 Just living with it
dmcff
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Re: 4 years of fissures

Postby patience_and_healing » 23 Mar 2018, 20:36

I hope the system helps improve your pain levels. Perhaps you could apply a water soluble lubricant to the cone to make it easier and less painful to use.
8/16-12/16: Fissure due to antibiotics
5/17: Botox to sphincter, fissure healed
9/19: Trigger point injections and pudendal nerve block
11/19: Botox to pelvic floor
8/20: Botox to pelvic floor in new location.
Currently in pelvic physical therapy
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Re: 4 years of fissures

Postby dmcff » 24 Mar 2018, 06:13

The cones have a lubricated tip - the lubricant is activated when you dip the cone in water. It's not too painful at first, but I find that I have quite a lot of discomfort for a fairly long time after inserting - more than several hours. But maybe this will improve with time.
2014 Anal fissure
2015 CAT scan, EUA and sigmoidoscopy, 2 MRI scans - 4 hospital stays - severe to low pain
2016 Anal fissure - pain severe then moderate to low
2017 Return of moderate pain
2018 Physiotherapy, pain management
2019-20 Just living with it
dmcff
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Re: 4 years of fissures

Postby Fissurefrustration » 07 Apr 2018, 19:53

So glad you’ve been able to get a diagnosis! Keep up the good work and let us know how things go.

Ff
Suffering since June 2013 :(

Methods tried:
Sitz Baths
GTN cream - awful migraines!
Manuka Honey / Coconut oil / Aloe
Vitamin E suppositories
Tablets (Fiber, Cod liver oil with vit A+D, Multi vits)my + tag excision X 2
Dilatiazem - so far so good.
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