you sound so depressed and i sympathize b/c i feel the same so often! i have contemplated suicide so many times in the past 2 1/2 years b/c nothing i do makes a difference and it's so out of my control i feel like ripping my hair out and screaming and crying. it is a miserable situation. so i KNOW HOW YOU FEEL and i know it's awful. but you cannot give up.
there are so many things to try and proctitis is pretty common and curable! have you even asked about or tried hydrocortisone suppositories? those are often prescribed for proctitis or any kind of anal irritation/inflammation. before you give up please try that at least. also, have you given up spicy/acidic foods and booze?? try extremely modifying your diet, have you considered macrobiotics or a gluten-free diet or some other kind of extreme? also, you should stop using toilet paper or wipes and instead use a bidet-type thing. i squirt clean with an enema bottle filled with warm water that way there's nothing externally irritating the anus. shower after every BM and then towel dry or use a hair dryer to minimize irritation.
have the drs really given you that hopeless of a prognosis? proctitis to me seems like a maintainable condition. have any drs suggested anything you can do to ease the pain and discomfort???
believe me, i can completely understand what you're going through, but you have to keep trying to find something to make it better. don't give up! you had a good day the other day, so try to analyze what you did that morning or the day before to make things tolerable.... i know it's annoying to have people try to cheer you up when you're depressed, but i honestly understand what you're going thru and i know you need to get yourself out of this dark hole.

So many wise things coming from you Juney...
Se PM Lars

brother,
i had have the same thing. they say the same red area to the right and did a tissue sample. They were convinced it was chrons. Came back negative on all tests. i am at the wound care center in denton texas waiting for the chamber. my insurance is fighting me tooth and nail. i am in the same pain and work 200%. i have projects overseas that makes it worse because i work during the day then go home and jump on skype to talk to china over the net. they have me on hydrocorizone foam which works. its just too expensive and boy do i enjoy putting it on at work. if you miss a dose of it you can tell the difference. without the foam i would be 50% like you as far as work goes. we went out to party for V-Day and i paid dearly. I drank water but all the moving and shaking caused me pain the next day. i am still paying for it. i hate people saying i am too skinny and what is wrong with you. gets old.
hope you feel better bro.
best regards
bernard

Oh Lars – I am so sorry you feel so helpless There’s just got to be a way through this for you...
I do believe that :nevergive:
Hugs to you

Nice input, Bernard. He has to deal with all of this plus work plus take care of two kids. So don't give up!!!

Hi Lars,
Keep going and don't give up.
Things will get better.

Prayers,
Jo

There is a product named Canasa (mesalamine, USP 1000 mg.It is used as suppository and is NOT steroid or cortisone based so it will never thin the mucosa. It is VERY strong anti-inflammatory- used for Crohn patients but for anal area inflammation too.
It was prescribed to me by Stanford Hospital CRS (one of the best hospitals in the USA), but I never tried it since I was determined to have another surgery and have the problem fixed once and for all.
Lars , Junney and Bernard - maybe you can try it - one never knows I am so horribly sorry to hear that you are still suffering - it brakes my heart to million peaces :( .
Love to all

it sounds great fissy! i just googled it and unfortunately for me it is made with sulfa which i'm allergic too :( i think i'll still mention it to my GI dr. thank you for the advice!

I will try and find the med you are talking about. Sounds good.
I also to have two kiddos and my wife travels 90% of the time. It kills me that my kids ask me why are you hurting or why cant you ride your bike with me? I just pretend i am ok most of the time. I also have to help with thier homework which is a challenge due to my Asperger syndrome/Dyslexia issue. Takes me 3 hours to do 3rd grade work. Man they sure do give those kids word problems that throw me through a loop!

Hang in there people. Keep the faith. Its not easy but we all have to get there some how...healed up.

Best regards
Bernard

I am glad you are posting, Bernard. I think about you a lot and think how in the world does he manage? I guess God must give us grace somehow to get through this.

You two hang in there.