by banjobuddy » 01 Feb 2017, 08:27
Hi MPB and MF,
I've been away from the forum for a little while and was feeling a little better but tore the fissure again yesterday. I was starting to think maybe I could avoid having the LIS, but I think it's more wishful thinking than anything else. I'm sure you know how it goes - when you're feeling a bit better you don't want to put yourself through it, but when it flares up again you want to have it done.
As I wrote a little while ago, I saw my CRS in January and pretty much bullied her into agreeing to do the LIS. It's a shame it had to come to that as I think I may have slightly soured our relationship with the arguing (not in an aggressive way, I might add). I haven't had the date for operation yet, but I know when it arrives I'll be focusing on it most of the time as the date gets nearer. As MPB has said to me, don't gauge everything by some of the difficulties some of the members have had on here with their LIS ops, as a lot of people stop posting as it's a complete success. You still worry that you'll be in that small percentage of problem cases, though.
I have to face the fact that unless I have less sphincter pressure, I'm always liable to tear at some point, even if I stayed fissure free for a while. For instance, this morning I bled again after a very full slightly bulky motion. I'm not spasming, but it feels sore and angry. There doesn't seem to be very much correlation between the food and the BM a lot of the time. I can eat something quite innocuous and I'll really suffer the next day.
My CRS wasn't super thrilled that I'd given up wholemeal bread and pear skins in favour of white bread and skinless pears and she also said I was having a low dose of Movicol (Miralax). That's all very well, but when I do up the roughage and the stool softeners, it sends me to the loo 3-4 times a day, producing stools with lots of residue - not pretty! I must admit I did something a bit stupid when I felt the fissure was clearing up and started eating biscuits and chocolate and snacking too much. I do eat free from biscuits, but I guess it's still dry. I also had several squares of Galaxy chocolate, rather than my usual Caramac (caramel bar - not really chocolate).
Mr F. Don't let your family decide what is best for you. I'm sure they're advising you out of love, but you know what you need and it's probably time to be selfish. My wife is very supportive and is happy with whatever I want to do. How I'll explain this to my 6-year-old daughter after the op if I'm incapacitated, I really don't know. It's not so much embarrassment, but I don't want her to worry about Daddy and get ideas it could happen to her. Awkward. Mr F., you say you're in your late 40s, I'm in my mid-50s, so I also don't want life to pass me by, especially with a young child. That damn thing is such life inhibitor - I love your 'do-it-anyway' attitude MPB. I just hope your situation rights itself in the medium to long term. If not, bully your GP and your CRS into the colostomy! At least with Crohns you have a fighting chance should this not give you what you need.
Huge hugs to everyone on this forum. We're all heroes in our own way. I can honestly I'd rather lose a finger and be cured of this wretched thing...and I'm a musician lol!