my current diagnosis:

non relaxing puborectalus muscle band

prostatitis

pudendal neuralgia

chronic pelvic pain

proctitis

cystitis

Interstitial Cystitis

Bladder pain syndrome

There are more.

My plan:

Do you need someone to talk to? You're not alone.

Hurt - you’ve got a diagnosis that’s something to go on. You must keep looking for an understanding doctor someone has got to take you seriously.

thank you

I’ll keep fighting

Not many on the board anymore I’ll check in maybe in 6 months

I wish you healing.

Yes keep fighting. Keep asking for help. Keep trying different medication for chronic pain and work with an understanding doctor to find the right doseage. Try alternative therapies. What about a pain clinic - my gp mentioned this. I haven’t tried it yet.

And maybe stop complaining regularly about the forum being quiet? Sorry but I have to say something about that. Everyone on here is trying their best to manage their lives with a painful condition, and don't need passive aggressive comments about their activity on this forum.

patience_and_healing wrote:And maybe stop complaining regularly about the forum being quiet? Sorry but I have to say something about that. Everyone on here is trying their best to manage their lives with a painful condition, and don't need passive aggressive comments about their activity on this forum.

fair enough.. why keep the servers running?

@Sue

Thank you for the pain clinic suggestion...been there done that 3 nerve blocks later I’m worse

I pray for all

I’m out

I see where patience is coming from - sometimes less people are in need of this forum and it will go quiet at times. However I am planning to speak to admin about raising the profile of this forum so it is more easily found in a google search so those in need can see it pop up in their searches online. This is how I found the forum originally. It’s a valuable place to go when you need reassurance and help and I’d like to see it more readily found in an online search.

Sorry the pain clinic did not help Hurt

patience_and_healing wrote:And maybe stop complaining regularly about the forum being quiet? Sorry but I have to say something about that. Everyone on here is trying their best to manage their lives with a painful condition, and don't need passive aggressive comments about their activity on this forum.

I must say that I agree with patience_and_healing.

dmcff