Love you all I’m not going to make it

Discuss any questions, problems or share your solutions here...

Return to General Anal Fissure Discussion



Love you all I’m not going to make it

Postby hurtinend » 14 Feb 2020, 16:14

my current diagnosis:

non relaxing puborectalus muscle band

prostatitis

pudendal neuralgia

chronic pelvic pain

proctitis

cystitis

Interstitial Cystitis

Bladder pain syndrome

There are more.

My plan:
hurtinend
King Fissure
 
Posts: 587
Topics: 52
Joined: 19 Dec 2013, 15:43
Location: Canada
Has thanked: 2 times
Been thanked: 51 times
Gender: Male

Re: Love you all I’m not going to make it

Postby flax » 14 Feb 2020, 16:35

Do you need someone to talk to? You're not alone.
flax
Fibre Addict
 
Posts: 18
Topics: 2
Joined: 14 Jan 2020, 09:26
Has thanked: 0 time
Been thanked: 0 time
Gender: None specified

Re: Love you all I’m not going to make it

Postby SueMac » 16 Feb 2020, 15:02

Hurt - you’ve got a diagnosis that’s something to go on. You must keep looking for an understanding doctor someone has got to take you seriously.
SueMac
Proctosphincteranalogist
 
Posts: 334
Topics: 7
Joined: 03 Dec 2018, 13:03
Location: UK
Has thanked: 10 times
Been thanked: 19 times
Gender: Female

Re: Love you all I’m not going to make it

Postby hurtinend » 19 Feb 2020, 16:40

thank you

I’ll keep fighting

Not many on the board anymore I’ll check in maybe in 6 months

I wish you healing.
hurtinend
King Fissure
 
Posts: 587
Topics: 52
Joined: 19 Dec 2013, 15:43
Location: Canada
Has thanked: 2 times
Been thanked: 51 times
Gender: Male

Re: Love you all I’m not going to make it

Postby SueMac » 20 Feb 2020, 04:51

Yes keep fighting. Keep asking for help. Keep trying different medication for chronic pain and work with an understanding doctor to find the right doseage. Try alternative therapies. What about a pain clinic - my gp mentioned this. I haven’t tried it yet.
SueMac
Proctosphincteranalogist
 
Posts: 334
Topics: 7
Joined: 03 Dec 2018, 13:03
Location: UK
Has thanked: 10 times
Been thanked: 19 times
Gender: Female

Re: Love you all I’m not going to make it

Postby patience_and_healing » 20 Feb 2020, 12:38

And maybe stop complaining regularly about the forum being quiet? Sorry but I have to say something about that. Everyone on here is trying their best to manage their lives with a painful condition, and don't need passive aggressive comments about their activity on this forum.
8/16-12/16: Fissure due to antibiotics
5/17: Botox to sphincter, fissure healed
9/19: Trigger point injections and pudendal nerve block
11/19: Botox to pelvic floor
8/20: Botox to pelvic floor in new location.
Currently in pelvic physical therapy
patience_and_healing
Moderator
 
Posts: 970
Topics: 38
Joined: 24 Feb 2017, 15:46
Location: California
Has thanked: 58 times
Been thanked: 116 times
Gender: Female

Re: Love you all I’m not going to make it

Postby hurtinend » 20 Feb 2020, 16:39

patience_and_healing wrote:And maybe stop complaining regularly about the forum being quiet? Sorry but I have to say something about that. Everyone on here is trying their best to manage their lives with a painful condition, and don't need passive aggressive comments about their activity on this forum.


fair enough.. why keep the servers running?

@Sue

Thank you for the pain clinic suggestion...been there done that 3 nerve blocks later I’m worse

I pray for all

I’m out
hurtinend
King Fissure
 
Posts: 587
Topics: 52
Joined: 19 Dec 2013, 15:43
Location: Canada
Has thanked: 2 times
Been thanked: 51 times
Gender: Male

Re: Love you all I’m not going to make it

Postby SueMac » 21 Feb 2020, 04:45

I see where patience is coming from - sometimes less people are in need of this forum and it will go quiet at times. However I am planning to speak to admin about raising the profile of this forum so it is more easily found in a google search so those in need can see it pop up in their searches online. This is how I found the forum originally. It’s a valuable place to go when you need reassurance and help and I’d like to see it more readily found in an online search.
SueMac
Proctosphincteranalogist
 
Posts: 334
Topics: 7
Joined: 03 Dec 2018, 13:03
Location: UK
Has thanked: 10 times
Been thanked: 19 times
Gender: Female

Re: Love you all I’m not going to make it

Postby SueMac » 21 Feb 2020, 04:46

Sorry the pain clinic did not help Hurt
SueMac
Proctosphincteranalogist
 
Posts: 334
Topics: 7
Joined: 03 Dec 2018, 13:03
Location: UK
Has thanked: 10 times
Been thanked: 19 times
Gender: Female

Re: Love you all I’m not going to make it

Postby dmcff » 21 Feb 2020, 07:05

patience_and_healing wrote:And maybe stop complaining regularly about the forum being quiet? Sorry but I have to say something about that. Everyone on here is trying their best to manage their lives with a painful condition, and don't need passive aggressive comments about their activity on this forum.


I must say that I agree with patience_and_healing.

dmcff
2014 Anal fissure
2015 CAT scan, EUA and sigmoidoscopy, 2 MRI scans - 4 hospital stays - severe to low pain
2016 Anal fissure - pain severe then moderate to low
2017 Return of moderate pain
2018 Physiotherapy, pain management
2019-20 Just living with it
dmcff
Moderator
 
Posts: 328
Topics: 37
Joined: 07 Jul 2015, 08:49
Location: Kent, U.K.
Has thanked: 63 times
Been thanked: 39 times
Gender: Male


  • Similar Topics
    Replies
    Views
    Last post

Return to General Anal Fissure Discussion



Who is online

Users browsing this forum: No registered users and 0 guests