Msimon,

I'm so sorry that you are having such a difficult time with all this.. It's so confusing to all of us.. I know what you mean when you say you're done... Do you have any other options, Before you go ahead with lis? Are you in higher risk, which is leading you to not have lis?

" I just don't know what to do. I am back and forth between whether it is the internal sphincter spasming or the pelvic floor/external sphincter. I turned down LIS today and of course am having such a bad day I kind of wish I went Sorry to complain so much. I'm done now"

Thanks Alyssa.

Just had to have a good cry about it all today. The trouble I am having is that I have often had bad pain flares from getting pelvic floor botox as the muscles readjust so I don't know how much of this is fissure. I sure never had the BM struggle I am having now though, so it must be the fissures. I really wonder how many I have now

I do think I am higher risk because when I had a very small amount of botox into the internal sphincter for the fissure I had really bad urgency and it also made my anismus worse. I really couldn't leave the house. I still hardly do now. Sure took the burning pain away for a while though. That was nice!

Now I have had the botox into the pelvic floor and feel too weak down there to cut my sphincter. Like I can hardly move the muscles down there (kegels) at all. Weird thing is though I am nowhere near incontinent (often can't even pass gas). I wonder if being in spams just makes one feel weak and like things are falling out down there...I'm co confused and there is nobody with answers so right now I am hoping time will tell me more.

How are things for you these days? Did the BMs sort out? Are you having less pain?

...I'm co confused and there is nobody with answers so right now I am hoping time will tell me more.

There's no doctor that you can go to that has experience with this?

I am doing ok.. Pain has decreased to a degree but pain still remains... Sitting pain and pain w bm remains; I have good days and bad days and then I have irritation which is really annoying! The confusing part for me is that pain varies... Some days my bm mildly stings, others my bum is sore, and then I have better days. So confusing...

I just started biofeedback this week since I have a weak vaginal wall (despite doing my Kegel exercises for several months)... I need to strengthen it to make sure that this is not adding to my pain..

I hope that you get some answers soon...praying for you

My pain is only rectally... Not really on the outside but on the inside of the rectum. Somedays when I have a bm it feels like its scrapping the wall as if sand paper is being rubbed around the wall.

To both of you,

Have you seen a pain management specialist to at least manage the pain as best you can while trying different procedures??

What medications have worked for you? I find endep which is an old anti depressant they use for nerve pain helps keep the edge of it. I have also been given lyrica which I take a small dose each morning, helps make the post bowel movement pain a bit more bearable. My pain always seems to peak about 2-3 hours after each bowel movement, however I still have a constant 24/7 burning pain which isn't always so severe.

My pain is mostly rectal and left sided.


I read this today from a chronic pain study:

"In the last five years, we have gained really clear evidence that the severity of pain in the acute phase is a risk factor for chronic pain," Cousins says.

In other words, if you suffer stoically through an episode of acute pain, you could be setting yourself up for a chronic pain problem down the track.

In other words fix your fissure fast in the acute phase before the nerve pain pathways become set?

Pafen,

I meet with my chronic pain specialist next week... I'll talk to her about some pain medication. I've just tried acupuncture Friday since some people have great results from it and hoping that it will do the same for me. My pain level is around a 2-3 now... The burning has lessened with Botox and bm are less painful.. Before it was pooping a hot coal, now it feels like sand paper is being scrapped on the walls... Light stings afterwards though

I had my fissure for 2-3 months... Been in physical therapy since April... Then had Botox on the pelvic floor in September... Almost 8 months now with anal pain... I worry that the muscles, nerves and tissues have this pain memory that will never go away for good. i just wonder how long it will take to be back to normal. No pain!

I have had some success with trigger point injections into my buttock.

Sometimes I would get up to about a weeks good pain relief. Unfortunately the Dr couldn't always inject in the right spot each time, so sometime it would work other times he would miss the mark. I could tell when he injected into the right area because the pain relief was immediate.

I believe the injection was a mixture of lignocaine and steroid.

Pafen,

Great to hear that you are having some positive results from these injections... I think Msimon started with these injections and then later got Botox.

Just wanted to share a website about pelvic pain; it shows some exercises that were featured on the dr. Oz show

Www.healpelvicpain.com