Pelvic Floor Dysfunction

Fissure like pains...anyone?

A sub-forum for those with pain, but no explanation for it. Vent, share, ask, and help others. That is what this little corner is all about!

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Re: Pelvic Floor Dysfunction

Postby pafen » 07 Oct 2014, 06:09

Alyssa,

My pain specialist does the sacral nerve root stimulation for chronic pelvic pain. It is an invasive procedure and something I may consider as a last resort after exhausting all other avenues.
Hemroidectomy, anal abscess, fissure, LIS
Pelvic floor Dysfunction since late 2012
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Re: Pelvic Floor Dysfunction

Postby Alyssa » 08 Oct 2014, 12:18

"I have had irritation/pain down there for over 10 years and in that time have rarely been able to sit for more that a short period of time."
I still have a minor dull ache (2-4 pain scale) and irritation going on...
Msimon,

Can you describe your pain and irritation? Is there any explanation why you aren't able to sit for long periods of times?

is there anything else we can use other than a heating pad to relieve this irritation? Is this irritation caused by nerves?
2/14 Fissure developed
3/14 Diagnosed w/ fissure given Nifedipine
4/14 Referred to Pelvic Floor Physical Therapy=Pelvic Floor Dysfunction
5/14 Fissure declared "healed"/chronic anal pain persists
9/5/14 Botox to pelvic floor
9/22 biofeedback
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Re: Pelvic Floor Dysfunction

Postby Alyssa » 08 Oct 2014, 12:23

"My pain specialist does the sacral nerve root stimulation for chronic pelvic pain. It is an invasive procedure and something I may consider as a last resort after exhausting all other avenues."

At least there is another option...

My doctor did not want to give me any pain medication because she was worried that it can constipate me! Is anyone else taking anything for the pain (that does not constipate me)? Any suggestions on what I should ask for?
2/14 Fissure developed
3/14 Diagnosed w/ fissure given Nifedipine
4/14 Referred to Pelvic Floor Physical Therapy=Pelvic Floor Dysfunction
5/14 Fissure declared "healed"/chronic anal pain persists
9/5/14 Botox to pelvic floor
9/22 biofeedback
Alyssa
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Re: Pelvic Floor Dysfunction

Postby pafen » 11 Oct 2014, 15:35

Alyssa,

Currently I am on cocktail of endep and lyrica. However looking back the medication which gave me the best relief was tramadol. I may even switch back to it yet.

I was taken off the tramadol because you can't take too many other medications with it. Ie it interacts with a lot of drugs.
Hemroidectomy, anal abscess, fissure, LIS
Pelvic floor Dysfunction since late 2012
pafen
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Re: Pelvic Floor Dysfunction

Postby Alyssa » 11 Oct 2014, 15:52

Do any of these drugs cause constipation?
2/14 Fissure developed
3/14 Diagnosed w/ fissure given Nifedipine
4/14 Referred to Pelvic Floor Physical Therapy=Pelvic Floor Dysfunction
5/14 Fissure declared "healed"/chronic anal pain persists
9/5/14 Botox to pelvic floor
9/22 biofeedback
Alyssa
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Re: Pelvic Floor Dysfunction

Postby Alyssa » 11 Oct 2014, 16:03

Other than that you have got me thinking about whether my LIS had enough muscle cut now."

Pafen,

I noticed on another forum that you are questioning whether your surgeon cut enough muscle... Have they checked if your sphincter is still tight? Done a pressure test after the procedure?
2/14 Fissure developed
3/14 Diagnosed w/ fissure given Nifedipine
4/14 Referred to Pelvic Floor Physical Therapy=Pelvic Floor Dysfunction
5/14 Fissure declared "healed"/chronic anal pain persists
9/5/14 Botox to pelvic floor
9/22 biofeedback
Alyssa
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Re: Pelvic Floor Dysfunction

Postby pafen » 11 Oct 2014, 18:11

I had an anal manometry test done to to measure my resting pressures but this was before the LIS. I have not had it done again since my LIS so can't be sure what my resting pressures would be now.

The specialist that performed it was one of the best in the country. My resting pressures were a little in the high range. His conclusion on the report was physiotherapy? He said it was proctalgia and that anyone can get it.

He said usually it lasts a few years and just vanishes on its own. I hope he is right!
Hemroidectomy, anal abscess, fissure, LIS
Pelvic floor Dysfunction since late 2012
pafen
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Re: Pelvic Floor Dysfunction

Postby volans » 11 Oct 2014, 23:03

I feel like a lot of my pain is from pelvic floor tightness. I have Nitroglycerin which relaxes the sphincter muscle but i don't think it spreads enough to reach any key pelvic floor muscles. I really would like to try Valium but so far doctors have said no.

Maybe biofeedback should be my next step? I have a real hard time getting a single finger inside to apply ointments, how do AF members tolerate biofeedback?
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Re: Pelvic Floor Dysfunction

Postby msimon » 12 Oct 2014, 02:56

Volans, the ointment used to relax the internal sphincter will not work on the pelvic floor muscles. The ointment only works on what is smooth muscle (like in the digestive system) not on skeletal muscle (those we have control of). Valium should work on the skeletal muscles...maybe you could find a Doc that would prescribe it as an ointment?

I know what you mean about not tolerating anything up there. Sadly, for me it took botox to get me in the door (the back door that is). Now I have to wait to heal these fissures first in order to resume what I was doing....it's been almost a year with this fissure problem and feel like I have lost all my gains :(
Dec '13 Fissure from anoscope
3 X internal sphincter botox
'08-'15 Botox for pelvic floor dysfunction
Nov '14 LIS/sentinel tag removal
Feb '15 Deroofing of recurrent infection from LIS
summer '15-healed but still ongoing muscle dysfunction/pain
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Re: Pelvic Floor Dysfunction

Postby pafen » 12 Oct 2014, 16:53

Alyssa,

I have about 6 prunes with yoghurt each night. I also take 2 coloxyl stool softeners. I find this keeps everything nice and soft with the medication I am on.
Hemroidectomy, anal abscess, fissure, LIS
Pelvic floor Dysfunction since late 2012
pafen
Proctosphincteranalogist
 
Posts: 130
Topics: 8
Joined: 18 Aug 2014, 04:30
Location: Queensland Australia
Has thanked: 6 times
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Gender: Male


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